Just wondering: if I have Peripheral Neuropathy, my... - NRAS

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Just wondering

QAGS profile image
QAGS
3 Replies

if I have Peripheral Neuropathy, my finger ends are sore, painful and have a burning sensation. I am on 20mgm MXT weekly. It has come on suddenly, I have tried to explain it to Medics, but no one has come up with a diagnosis. I picked up on this condition on his site, so painful, and so worried.

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QAGS profile image
QAGS
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Ruth12345 profile image
Ruth12345

Im sorry to read this and only thing I can say is I have same in my toes going into balls of feet. Came on suddenly about 3 weeks ago.Saw rheumy on Friday at planned review and told him and he was not interested and didnt even look at my feet. They burn constantly especially big toes, no swelling though. Hope you get sorted better than me.

Aless2002 profile image
Aless2002

Well well well......I have the extremely sensitive to heat finger tips (can't even pick up a piece of toast when it's in the toaster!). However, I machine sew, knit, and embroider without problem. It's just heat. No doctor or specialist I attend or have spoken to about this can explain it. About 10 years later, I now have a severe problem exactly like you've explained, involving just toes and balls of feet. It came on slowly over about 20 years, starting with pain in the balls of my feet just below the toe joints where they join the foot. I assumed it was my shoes and spent $$ trying to find The Pair. I finally had to give up on heels of even a tiny height. Once again no one has a clue. My podiatrist says I definitely DON'T have peripheral neuropathy. I react to all the tests he does, but my feet feel like blocks of wood most of the time.(Balance is becoming a real problem.) I am trying (on loan from my pharmacy) a circulation booster machine at the moment, on my GP's advice.He doesn't know what's wrong with my feet but has some friends who have had "weird feet problems" helped by this unit (a type of TENS machine). Unfortunately, it's also very expensive to buy! I have never met or heard of anyone else with this problem. I am also on MTX (for about 15 years) but it's a low dose once a week to be taken in tandem with Cosentyx (I have PsA). I'd be so happy to hear of any others who have these problems-maybe together we can sort something out.

Lizzie3 profile image
Lizzie3

Hi, MTX works by reducing folic acid in the body. A lack of this can cause pins and needles. Might be worth having a blood test to check your levels and also speaking to your doctor see if you are taking enough folic acid supplements. I have had this problem too and it is very unpleasant. All the very best - Liz

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