I don't have RA, I have ankylosing spondylitis and this seemed the best board to join there being no specific AS board on here.
My worst issue at the moment is jaw pain: last night it started again really severe pain that kept me awake much of the night. This morning was horrendous but I managed to get some cornflakes down me so I could take my pain meds. I take 1000mg naproxen daily and I am also on Cimzia.
The pain is always on the right side, it radiates from my lower jaw and I end up with earache, eye socket ache, headache, pain running down my neck, pain along the gum top and bottom of my mouth. It is a very sharp intense ache, not stabbing. I've been to the dentist numerous times and had multiple x-rays taken but nothing can be found. I've asked my rheumy if this is an AS symptom: she says no, although I have seen many others complain of jaw pain on FB AS pages. I've had a very expensive mouth guard made by the dentist that is not helping. My teeth are very crowded (thanks NHS dentistry of the 80s) and I have cracked all the enamel on that side of my mouth as I have been clenching my teeth at night, hence the mouthguard. My dentist says the clenching is causing the pain but is not offering any other solution than the guard and there seems little point in going back, paying yet another consultation fee, to be told that nothing else can be found. My last x-rays were in October.
I'm at my wits end. I've just driven my son to school in tears from the pain and in an hour I've got to take my daughter to a hospital appointment. I've swilled with salt water, applied heat pads. I see the hygienist regularly and he says I don't have gum disease. I've had this pain for over 4 years now - not every day, I do have periods where I am not troubled by it.
It's the most debilitating pain, far worse than any back or hip pain I get with the AS. Any advice gratefully received!