RA and severe stenosis: Does anyone have both RA and... - NRAS

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RA and severe stenosis

Jollytime profile image
9 Replies

Does anyone have both RA and stenosis? Diagnosed with RA 4 years ago. Have been on the 4 usual meds, mtx, plaqunil, prednisone and folic acid. Infusions of Actemera once a month. Because of pain, burning, numbness, tingling in left arm, hand and fingers had mri. Severe stenosis in spine. Surgery recommended for neck but...because of RA and having to be taking off of all RA meds for 4 months I’ll try physical therapy. Recently I am having pain and difficulty in walking in legs and right hip. Pain is moving all around !!!!!

Has anyone gone through anything similar? RA and Stenosis?

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Jollytime profile image
Jollytime
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9 Replies
hawker955 profile image
hawker955

Stenosis of what? Stenosis is not a disease it is a description of something . It could relate to one's aorta or something else? You'll have to be more specific I think.

HTH?

Jollytime profile image
Jollytime

Spinal stenosis? Neck is severe, I think C5, lumber also

Jollytime profile image
Jollytime in reply to Jollytime

I was told by neurosurgeon that a fall or hit from behind could cause paralasyis

BoneyC profile image
BoneyC in reply to Jollytime

Yes! I had spinal cord compression (C3 subluxed onto C4) with a constitutionally narrow canal (stenosis) in 2002. I was told I could fall and be paralysed from neck down or dead! I had urgent neurosurgery 2 weeks later to decompress and fix my spine at C3-C6 with titanium rods. I was dx as a child in 1971, so had the disease 31 years in 2002.

Gigi71 profile image
Gigi71

I Received a letter from my pain management doctor this morning after a lumber MRI on the 27th October. I have a grade 2 anterolisthesis of L 4 on L5 and severe canal stenosis. I have been referred to Complex Spine MDT they had a meeting yesterday, so I await results. To say I am in severe pain is to put it lightly. I've had erosive RD for 33 years mainly controlled by Humira and pred, also mtx and naproxen . I've had lower back pain for 2 1/2 but getting so much worst. So fully sympathise with you. What do you use as a pain killer for this. I have been offered Duluxatine. Can't take opiate meds.

G X

Brikel profile image
Brikel in reply to Gigi71

When I had mine I was on Gabapentin it was good

Gigi71 profile image
Gigi71 in reply to Brikel

I was offered this but couldn't get on with Amtripilene when I tried it so wasn't happy to try this one. I will have to sort something out, using a tens machine and heat patches at the moment. X

PFKAAde profile image
PFKAAde

Yeah I had a series of disc prolapses that resulted in severe stenosis and two emergency laminectomies at l4/5 and c2/3.

I am left with mild scoliosis, spinal stenosis, spondylolisthesis and neuropathy.

For me, following surgery, I was left with severe muscle loss, drop foot (an inability to lift your foot up which is a PITA) and various other symptoms.

I have been seeing a personal trainer for the last 2 years to try to regain muscle / strength and some mobility. It has made a massive difference and I cannot stress enough how much this has helped with pain and mobility.

I hope you find some answers.

🙏🏻

Brikel profile image
Brikel

Hi

I had spinal stenosis also R A

I had a laminectomy on L1 to L5 in 2016 and it worked It was a difficult time prior to surgery

I came off benepali for two weeks before the operation but kept on ssz

I hope you get it sorted

Regards

Brian

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