Peripheral Neuropathy: Hi I was diagnosed 2yrs ago with... - NRAS

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Peripheral Neuropathy

Sorop profile image
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Hi I was diagnosed 2yrs ago with PMR and subsequently GCA but I have increasingly had numbness, tingling, tenderness and hot and cold sensations in my feet and legs which has been working its way further up my legs. I have also had increasing loss of balance. I do not know what to do with my legs at night. I saw my Reumy yesterday and he was very concerned and has referred me to a Neurologist as he thinks I now have peripheral neuropathy. Has anyone had experience of this?

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Sorop profile image
Sorop
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Padram profile image
Padram

Hi Sorop, almost all of us with an Auto Immune Disorder will have some neurological issues. Lack of Vit B 12 is a major cause. Also, low vit D levels could result in tingling. After supplementation, I don't have these issues, now. I have ITP and RA, so, I have to continue these supplements for life.

Sorop profile image
Sorop in reply to Padram

Thank you Padram

They have taken bloods and am waiting for the results. I will look into the Vit B 12 and vit D aspect thank you. I am sorry to hear of your health problems I have not heard of ITP before. We learn so much by belonging to this forum it is supportive and informative.

Padram profile image
Padram in reply to Sorop

Hi Sorop, it's true we learn a lot. I got ITP after taking Yellow Fever Vaccine. Fact is genetically predisposed people should not take Live vaccines. My mom had RA, my paternal grandfather had PsA.

I paid the price unwittingly. ITP is an Auto Immune Disorder that destroys platelets.

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