Newbie... suffering since 09,undiagnosed inner leg pain,thigh to ankle,burning buzzing,knees can't touch,worst at night,no zzz.help?ideas?x

[Flutterfly1]

Hypothyroid,B12 injector,Lyme Disease.Longterm Abx treatment.But wits end with leg pain.Anyone else out there like me with this type of pain?

Ideas so welcome before I go mental x

[oldtimer]

Just sorry to hear you are in such distress but no ideas...

[Flutterfly1 in reply to oldtimer]

Thank you oldtimer,appreciate your sentiments x

[Mandalou]

When you say ‘ buzzing’ what do you mean by that?

I only ask because I too get buzzing iin all manner iof places and the more I tell health proffessionals the more they look at me like Im bonkers.

I think its a manifestation of inflammation and your body can ‘ hear’ / sense it.

As I write this I can feel buzzing in my left ankle/foot.

Mx

[Flutterfly1 in reply to Mandalou]

Hi Mandalou,

Thanks for replying.

The best way I can describe it is like my inner legs are in a constant state of vibration that feels like your phone when it vibrates.

I only get this in my inner legs,the pain is outrageous at times.

It is an all day thing but worst at night.The duvet is even too much for my legs to bear at times.

X

[Mandalou]

I'm so sorry to hear that Flutterfly1 you must talk to a doc about it. The fact a duvet is too much to bear means something is going on that needs proper attention.

I totally get you regards the vibrating feeling though. Just prior to my diagnosis my knees rumbled away like a phone on vibrate.

I'm sorry I can't help you but I truly sympathise and understand how rotten a time you are having.

Best wishes and hope you get relief soon.

Mx

[Flutterfly1 in reply to Mandalou]

Many thanks for your kind wishes.Have been to many doctors,being treated by a Pain Specialist and Lyme Literate Doc at mo as well as GP.

No name for this pain.I feel like I don't describe it very well if I'm honest.

22 medicine types a day.

Pain meds are solpadol and ponstan but not touching this at mo.

Just need to find an off switch or how to dial things down so I can at least sleep a little.

I appreciate the virtual hug only a fellow sufferer can give.

Good luck on your journey x