Cimzia : Hi all , I’ve been injecting Cimzia for 1... - NRAS

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Cimzia

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Hi all , I’ve been injecting Cimzia for 18 months now for RA , I’m so tired like extremely tired all the time , I sleep really well but wake up exhausted, has anyone else suffered this , I’m currently having blood tests done to see if I’m lacking in anything

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24 Replies
popsmith1874 profile image
popsmith1874

I'm just wondering if your disease is under control as I had that problem last month really bad fatigue but I also had burning joints as well and rheumatology said it was because my Ra wasn't under control I would give them a ring

waterend profile image
waterend in reply to popsmith1874

My joints are fine , I feel so good apart from the tiredness, are you ok now ?

popsmith1874 profile image
popsmith1874 in reply to waterend

No still struggling I'm on Benepali Methetrexate and they've added Sulfazalasine a month ago but no change but I'll give it another couple off weeks then tell them I need something else , hope you get the sleep pattern sorted xxx

Nsmith13 profile image
Nsmith13 in reply to popsmith1874

Yes I was the same so disappointed been bk to clinic and lm starting rituximab infusions lm so tired and would welcome any good reviews on this med ????

waterend profile image
waterend in reply to Nsmith13

Cimzia has relieved all my joint pain it’s just this exhaustion that’s bringing me down

jools34 profile image
jools34 in reply to waterend

This sounds just like how I feel, my joints are so much better, but I am so tired , I sleep ok most nights , but I can have up to 5 hours a day sleep in bed too if I’ve been busy, I have my 10 month old granddaughter Monday and Wednesday with my husbands help, from 9 till 30 , as soon as she goes I go to bed for a rest slept for 4 hours after she went.

waterend profile image
waterend in reply to jools34

Oh jools you sound just like me , have you asked anyone about it or like me struggled on , it’s like they’ve got rid of one problem and replaced it with another 😢

jools34 profile image
jools34 in reply to waterend

No they just said at hospital fatigue is part of rheumatoid arthritis. I’m usually ok but when we go on holiday usually cruising I am ok one day then the next day I have to stay in my cabin sleeping while my husband goes off without me. but at least I’m not in as much pain . I don’t think doctors take fatigue seriously.

waterend profile image
waterend in reply to jools34

I’ll let you know how I get on cos I’m not letting it drop , I can’t go on like this x

jools34 profile image
jools34 in reply to waterend

Good luck hope you get something done about it, and dont forget keep me updated. X

Matilda_1922 profile image
Matilda_1922

Hi waterend

I am exactly like this waking tired Which steadily worsens as the day goes. I need to take a sedative to help me sleep.

I had bloods that found my vitamin D level was low in March. I feel better for a few weeks but fatigue begins to develop over the next few months. I have been given a high dose Vit D and usually have a blood test a couple of weeks after I finish.

So it could be your vitamin D level low that causing your tiredness. The low Vitamin D has happened for the last 3 years. Have tried tablets and they don’t help.

I spent a night away from home last week and forgot to take my sedative. I didn’t sleep a wink so very tired the next day. I need to continue to take my sedative as I was thinking to slowly reduce over the next few months.

Sorry for the long message

Hope you find out what is causing your tiredness and you feel better soon.

waterend profile image
waterend in reply to Matilda_1922

I sleep like a log no problems there x

Nsmith13 profile image
Nsmith13

I think it's an on going problem if disease active and not under control I had restless leg syndrome last night it was horrible kept me awake

waterend profile image
waterend in reply to Nsmith13

I feel RA is under control no joint pain at all ( touch wood )

Moomin8 profile image
Moomin8

Hi I have the Cimzia injection too and have done for a similar length of time. I go to bed early and wake early. I suppose I would say I'm exhausted but as I have to go to work in a school I don't have time to think about it tbh. I take a load of vits alongside my meds which I feel helps. Hopefully your blood test will show what's going on - might be b12 or vit d deficient? Let us know how you get on.

waterend profile image
waterend in reply to Moomin8

Gosh how do you do it , I work 3 mornings and I’m exhausted, it’s definitely Cimzia , it must take something out of our bodies , apart from tiredness I feel great x

Scottishlad profile image
Scottishlad in reply to waterend

As a long term user of Cimzia I don't think it is the Cimzia. Fatigue is a common symptom of RA. Fatigue is generally a sign that RA is not fully controlled.

waterend profile image
waterend in reply to Scottishlad

But I don’t have any swelling , heat or pain

Scottishlad profile image
Scottishlad in reply to waterend

RA is complex and can affect the body in many different ways. I think you would be best discussing this with your Rheumatology team.

waterend profile image
waterend in reply to Scottishlad

I’m in the process of lots of blood test then if clear rheumatology

Moomin8 profile image
Moomin8

I suppose we all find our way... I love seeing the kiddlewinks everyday- they keep me in my toes! Yes, it hurts but I'd rather be there than at home. When I was off for 6 months I got stir-crazy 🙃🤓

AmyDee207 profile image
AmyDee207

I used to be on Cimzia but unfortunately it didn't work for me, many joints flared up and I was stiff every morning. As fatigue is a side effect of the RA just make sure the meds are definitely working for you.

I'm now on tocilizumab but fatigue is still terrible. I complained to my rheumatologist but unfortunately there's not much they can do, they just suggest you stay active which is easier said than done!!!

Paulajolo profile image
Paulajolo

Just to let you know I suffered with terrible fatigue on Cimzia. Since I have been put on Orencia fatigue has gone unless I overdue stuff. Lol.

waterend profile image
waterend in reply to Paulajolo

Really gosh this gives me hope , when I see rheumatologist I’ll ask about that , thank you x

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