I am now off MTX as it was not helping and side effects were unbearable. I consented to a third dose of Rituxan in February but will not agree to any more.
I have been trying an endless array of drugs for three years in July. So enough is enough. The oil vaporizer is the only drug I intend to continue. It is very frustrating. I feel like a lab experiment. I accept that I was undiagnosed for many years therefor very drug resistant but why continue to give them to me?.
I love my Rheumatologist but not enough to continue taking these drugs.
I have completely changed diet, lifestyle and excessive. Mostly walking as I can do little else. My fear is my “health care providers” and not this condition. Not certain where to turn. So waiting for the next crisis ! Developing a twisted sense of humour but it works for me. Now that I refuse opiates, Biologics and DMARD’s I have no need for doctors. I already said I would not do any form of surgery so little left to do but wait.