Hello. New person here. Hi.
I have an seronegative inflammatory arthritis and I'm in my 30s. I was initially put on hydroxychloroquine and it made a huge difference for me. A miracle drug. Last year, after about a year on hydroxy, I had a worsening of joint symptoms during a time of acute stress and was put on sulfasalazine and the HCQ was reduced. I was told I might have psoriatic arthritis (I don't have any skin psoriasis but I do have nail pitting).
I had really horrible side effects from the sulfasalazine at first but they settled down. I also had a rash but it only lasted 48 hours.
After a few months on the sulfasalazine I can't say I've noticed much improvement. I also think my mood has been very low and I'm concerned that the drug is to blame.
I had POTS in the past but it resolved last year. Now it's returned. I also have some digital ulcers and mild raynaud's.
I was really pinning my hopes on the sulfasalazine but it's done nothing really. If anything it might have even made me worse. And I don't understand because the doctor said it was really good for psoriatic arthritis.
I have given it more than 3 months now and I'm prepared to quit. I see my consultant soon and I just don't know what the next step is. I work full-time and the thought of trying methotrexate terrifies me.
Plus, I don't really know what is wrong. I have obvious joint problems. I'm pretty sure it's not RA, and I can see why they think it's PsA - I have classic signs like the heel pain and sacroiliitis and dactylistis and nail pitting. But I don't have psoriasis and hydroxychloroquine shouldn't have helped so much for PsA should it? And there are other unexplained symptoms that point more towards something else. And I used to get nasal ulcers which have disappeared since being on hydroxychloroquine. But all my antibody tests were negative. But I haven't been tested for 3 years.
I'm so confused. I don't know where to turn next, what to ask the doctor, what to expect. I just want to not be in pain anymore. I need to make the most of my upcoming appointment so really any thoughts would be welcome. X