Finely

[loppyloo12]

Back in July I got told I was going on a new drug throu injection I had a lot of blood then never got a follow up appointment to start it had few flares but finely got my appointment now for end January so hopefully my partner can have a break from helping me when flareing up xx

[Deniseelk]

Do you know which drug your Rheumy was considering? What drugs have you tried and why the need for a different one?

[loppyloo12 in reply to Deniseelk]

I'm on hydroqiquaxin and lufudimid and I'm going on a tni or somat think I've tried mextrxate but it made me sick so as I'm still swollen and stuggle a lot so we will see

[Deniseelk in reply to loppyloo12]

Sounds similar, I am on Hydroxychloroquine ( but not helping) so added Methotrexate ( oral) for 5 1/2 months but I couldn’t tolerate the side effects. Rheumy said it wasn’t holding the RA anyway so I was assessed ( DAS score) for funding for an anti-tnf drug Benepali ( subcutaneous metoject pen) which is delivered by Healthcare at Home which has to be refrigerated . I had to undergo blood screening to check no underlying infections ( this is due to Benepali being an immunosuppressant drug and makes the chances higher of turning any latent infection active). Make sure you ask your Rheumy for those results.... my first set never came back, took more and it turned out I had latent TB! Had to take TB antibiotics for 3 months to kill off latent bacteria. I took quite some time to get all this in place and HAH to send a nurse to train me and the Benepali to arrive. Make sure you discuss any anti-inflammatory / pain relief options you may need in the meantime. Best of luck!

[loppyloo12 in reply to Deniseelk]

Yes I ment a tnf drug so we will see scared of taken injection again as I was quite sick with mex but anythink that helps xx

[Deniseelk in reply to loppyloo12]

If it’s any comfort I have not had any side effects on Benepali.

[loppyloo12 in reply to Deniseelk]

I hope not cos I stuggle now to eat a full meal without being or feeling sick xx

[Ouchyjenna]

I was in the exact same position as you. I had to wait since July but I had my first injection last week and no side effects at all. I was really scared to inject again after being so sick on the mtx but it's absolutely fine! Good luck

[loppyloo12 in reply to Ouchyjenna]

Thanks