To difficult box

[LesJames]

Hi, After 10+ years of pain and suffering tests and Scans, it has finally been decided that I have fibromyalgia. As such I have come of the Methotrexate. Can anyone advise me on how best to do this? Just go cold turkey, drop 2.5mg weekly or 5mg weekly ? I am currently on 20mg having come down from 25mg some time ago.

[helixhelix]

Did your doctors not advise you? And presumably your prescription has been amended so you won't have access to it anyway?

As far as I know there's no problem with just stopping MTX, as no withdrawal issues , but always check with your own doctors.

[SoulmanPaul in reply to helixhelix]

Hi. I had to stop Mtx last year for 8 weeks when I got Shingles. No withdrawal issues. But yes..confirm with your Go

Paul

[Mandy8175]

I have no idea about dropping MTX, but I also have fibromyalgia! What meds were you put on for it?

[LesJames in reply to Mandy8175]

I have not been put on any. I am on Prednisone 10mg and am likely to stay on that as my adrenal glands have proven to be insufficient. I have been referred to the Pain clinic for them to look at what I am on and reallocate. I will let you know if they change mine.

[Mandy8175 in reply to LesJames]

I was put on Cymbalta first, then Lyrica, Savella, and gabapentin. I had reaction to all of them, so after we get my inflammation under control I am going to try wellbutrin. I want to see how much of my pain is the RD before I add meds for the fibromyalgia.

Hope you find compassion at the pain clinic, some of them treat fibromyalgia patients like they are lying junkies.

[Someonesmother]

I am so sorry they have that diagnosis because they are lazy and don't know what to do. I have fought that off twice as a diagnosis as I do not have any of the symptoms apart from pain. I hope you can find someone who will listen to you and not fob you off with that. all the best and sorry I only ever took mtx for a short period as it caused me to want to kill people. Not quite the reaction I was after.

[LesJames in reply to Someonesmother]

Thanks, I think the new diagnosis of Vascular Dementia will take its toll before they get to the bottom of this.

[Someonesmother in reply to LesJames]

Oh I am sorry to hear that. I hope you will get proper pain relief though and not be left to just cope like I was for a year. All the best.