I have a rheumy appointment on Tuesday that I've had to beg and beg for. I was diagnosed in September last year and they couldn't do enough for me but then I failed on my fourth dmard in February and became persona non grata.
My symptoms have got worse and worse and I am at the end of my tether. According to three GPs and an occupational health doctor I have obvious swelling in all my fingers, my knees which one described as wobbling like a jelly. Swollen ankles and swollen elbows. My bloods however are normal now. Last year all these symptoms were described by the hospital as RA. In June however I had an ultrasound on my fingers that did not show inflammation only fluid. After putting a complaint in I was seen by a consultant who again said well there is a bit of fluid, try some anti-depressants.
I am totally at the end of my tether, I am in constant pain, I can't bend my knees or ankles, my hands are so stiff I've lost all my dexterity. The rheumatology physio confirmed all this.
I am terrified I am going to see the consultant on Tuesday and be told sorry can't see anything wrong. Nobody, not my GPs, not my Occ Heath doctor or the physio can understand why they keep saying they can't see such obvious swelling.
Has anyone else had this? I'm told I have extensive fluid in all my joints but no inflammation so I don't need treating. My GP has told me to refuse to move out of the clinic room until I get something done