I have been taking Hydroxychoroquine for 2 1/2 years for RA. Started taking methotrexate 9 months ago in addition to the hydro.
Took a few months to become effective and really see any changes but it did help. However, the side effects have been dreadful, headaches, nausea, general feeling of being unwell for at least 4 months, this slowly improved and I must say my RA symptoms improved dramatically. For approx 2 months I really started to feel like me again.
Sadly for the last 3 months the headaches have returned with a vengeance, some days it is so debilitating that I cannot carry on any 'normal' activities, let alone function at work. I have tried the usual things, drink plenty of water, keep fit, eat well, avoid alcohol etc, but still felt totally lousy!
As drastic as it sounds I have stopped the medication, completely. Is it safe to just stop? Have read a little which suggests you should cut down slowly but I really cannot face taking it anymore, the side effects really do seem to outweigh the pros of taking it, for now at least, that said my husband would kill me if he knew I had stopped taking it!
Has anyone else stopped taking it? Surely there must be another way, something that dies not involve putting vast amounts of chemicals in to your body?
Would appreciate understanding other people's experiences.