Fibromyalgia diagnosis today: Not sure how I feel today... - NRAS

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Fibromyalgia diagnosis today

Smerdon74 profile image
7 Replies

Not sure how I feel today after seeing the Rheumy registrar. Now been told that as things continue to deteriorate instead of improve and pain not restricted to joints; they now believe I have fibromyalgia. I was assured that losing weight and exercise again would improve the condition, but don't know how I feel about it fobbed off or starting all over again 12 months after being diagnosed with RA.

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Smerdon74 profile image
Smerdon74
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7 Replies
Nettac profile image
Nettac

Sorry you are having a rough time.

Seems to me that a diagnosis of fibromyalgia is dumped on lots of folks. Particularly if drugs are not very effective .

JennyA123 profile image
JennyA123

Hi I'm sorry.. I was just diagnosed with fibromyalgia, after having RA for 2 years and after trying all kinds of Meds and infusion now my Dr gives me gabapenting.. I don't want to take it I had it before and I get foggy in my head.. what are taking now???

Smerdon74 profile image
Smerdon74 in reply to JennyA123

Nothing waiting to see pain clinic as tramadol ineffective and I see no point in taking drugs that don't have any benefit. It gets me down being in pain / discomfort but I was told that I should always expect to have some degree of pain regardless 😔

JennyA123 profile image
JennyA123

Thanks for Sharing, I know is not easy to deal with all this.. we have to stay positive. Good luck!

Damaged profile image
Damaged

Hey Smerdon74, I was labeled Fibromyalgia before RD. I had genetics done due to drug allergies. I find canabis vaporizer is great. It also provides a natural antiinflammatory. I have recently switched to an oil vaporizer as it is more economical.

Smerdon74 profile image
Smerdon74 in reply to Damaged

Thanks

Damaged profile image
Damaged

I strongly recommend genetic screening. I am allergic to the world since having a baby. My baby is now 38. Amazing how quickly that happens lol

I also had his screening done.

The most useful part being pharmacogenetics

. Also Nutrigenomics. So how your body responds to individual drugs and nutrients.

It sure beats being the lab experiment.

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