Leg vibrating like a mobile under skin on silent.

[Swanky]

Hi all I'm going nuts, been having all sorts of problems, right hand completely numb 3 fingers from bottom mainly, pins and needles and numbness in right arm 24/7 can not close my little finger to my hand now my left leg is vibrating 24/7 cant sleep on meds been going on for over 3 months now help is rubbish meds don't help any advise ? 6 kids to care for no income now as had to give my job up as got RA been having treatment for over a year now, was working 12 hour shifts in care with autistic adults with learning difficulties I'm getting worse and could not cope with the violence as getting weaker day by day. I was pushed out my job because of my illness, now cant get employed as soon as i say i have RA they don't get back to me. Im going nuts and not getting the help i need please advise if you have had the same battle thank you for your time Simon.

[Elmo333]

I sometimes get the mobile phone thing, it's such a strange feeling. If you look it up, you will be told that it's MS or something worse but in my case, I don't think it is anything to worry about. It happens for a few days every now and again (obv your experience is different). I'm not worried about it but get it checked if you are. It's frustrating that sometimes there are no answers.

[Swanky in reply to Elmo333]

Thanks Elmo read below i explain more 👍

[Swanky in reply to Elmo333]

Back to doctors tomorrow elmo see what they reckon about the vibrating will keep u posted guys.

[Elmo333 in reply to Swanky]

Good luck, I hope you get an answer (a simple one!). Def let us know.

[nomoreheels]

Hiya Simon. I replied earlier to your introductory post! Seems to me you've similar symptoms to what I've just been diagnosed with so you may want to discuss them with your Rheumy or nurse. I'll start as you have with your hand, this sounds as though it could be carpal tunnel syndrome arthritisresearchuk.org/art.... As you'll read the cause is a nerve (the median nerve) at the top of the wrist/palm which because of inflammation becomes compressed & causes the sensation you're describing & radiates up the arm &, if advanced, to the shoulder. I had CT release back in 2013 in my left, prior to this nerve conduction tests indicated I also had in my right but less severely than my left so it was this which was operated on. Only last week I had repeat tests done which show now my right had advanced & needs release. It also confirmed peripheral neuropathy, legs, which I describe like a low grade fizzing on resting & the vibration of a tuning fork when walking. Sound familiar or do you think yours feels different?

It sounds like you're really struggling since losing your job. I wish you'd have found us before being dismissed from your job because you have rights under the Disability Discrimination Act & some of our members are really clued up on this. Your immediate income is a little more difficult for us to help with but your local Welfare Rights Officer will (your Town Hall will have contact details). You could see if you're eligible to apply for PIP too citizensadvice.org.uk/benef.... Other benefits may be available to you.

I hope some of this helps. If there's anything else our experience as a group may be able to help you with just so, we've lots of advice we can share now you've found us. 🙂

[Swanky in reply to nomoreheels]

Thank you for the reply nomoreheels i have been told it is not CT i have had nerve conduction 2 weeks ago and have been called back tomorrow morning for more nerve conduction stuff and also after that they are giving me something called

electromyography they told me last time i was loosing use of my right arm and getting weaker and the consultant will need to see me. And my vibration i can only describe it as a mobile phone inside my leg buzzing very strange indeed so lost at min thank you so much for your help regards Simon

[marie66]

Simon my arm looked like a balloon! I had nerve conduction test done and they said no to carpal tunnel but then I got diagnosed with RA my arm hand and wrist is still swollen and last letter from Rheummy has it now recorded as RA and secondary carpal tunnel! My guess is the swelling is squeezing on the nerves...If you have swelling might still be a carpal issue in the mix! M x

[Swanky in reply to marie66]

Hi Marie no not carpal tunnel been back today for more nerve conduction they also stuck needles in my muscles they are now going to look at neck and back issues. I already have RA and that's bad enough but getting more and more strange stuff going on there looking into fibromyalgia also I guess I just have to wait that's the trouble with nhs but that's all I can get can not afford private or I would. I should of listened to my Nan years ago to save money for a rainy day ! Bless her she passed now but how right she was ! And how wrong was I beer and women not saving thanks Marie x