Eye drops?: Hi. I'm suffering with double vision in my... - NRAS

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Eye drops?

Alderess profile image
19 Replies

Hi. I'm suffering with double vision in my driest eye. I've had Sjögren's for a long time but the double vision is newish. Eye drops make it go away for a few minutes, but I can't keep on putting them in every few minutes.

Can anyone recommend longer lasting or more lubricating drops than hypermellose?

Thanks

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Alderess profile image
Alderess
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19 Replies
Simba1992 profile image
Simba1992

Hello, I've had dry eyes for a very long time and they are certainly not getting better with time. I had the same thing happening to my left eye. The doc said I had scraches on the eye because I haven't used enough drops. Now I am taking Optive, fusion three times a day and inbetween if I need something Lacrafluid. For the night I take vit A cream. And this is really working quite well. There is also research on that Q 10 helps with dry eyes. I take 200mg a day. A good supplement to take otherwise too. 😊

Alderess profile image
Alderess in reply to Simba1992

Thank you. I'll look into these. 🙂

Mrsrkendall profile image
Mrsrkendall

You may want to see your eye doc about this one. There can be flares in your eyes just like anywhere else. If it's nothing he can recommend a great drop. But if it's something you'll be glad you went.

Fruitandnutcase profile image
Fruitandnutcase

Hypermellose is ok for the sjorgens but you will need to use it every hour and use Thealose in between, if you know you have corneal damage use Thealose Duo.

I've got really dry eyes, my rheumy thinks I'm working up to sjorgens even though I don't have the markers for it - yet. I always use additive free drops and you really do have to put them in very frequently throughout the day. At the moment I'm having to use Beconase spray from the doctor as well as my eye drops and I've added Optichrom and an antihistamine as well in case it's actually pollen that's causing the dry eyes. Between it all my eyes have stopped feeling like they've been sandpapered and the bony area around my eye sockets has settled down so that I no longer feel I've been punched in the face.

In my experience you do have to put drops in regularly throughout the day - certainly in the beginning of a flare up - to sort out dry eyes.

PS I should also say find yourself a good local optician who will check your eyes out and help you get them feeling better, that's what I did.

Gigi71 profile image
Gigi71

I have dry eyes and given Artelac nighttime gel. And Systane Balance for the day. The gel can be taken in the day if you need something that lasts longer. Hope you find something that helps you. All the best. Xx

johare profile image
johare

Hi I have tried many that my dr gave me but fine Systaine Ultra advised by my optician last the longest. I cannot get them on prescription though.

Fruitandnutcase profile image
Fruitandnutcase in reply to johare

No, that's the trouble. I've noticed that generally doctors don't seem to like to prescribe the really good (expensive!) stuff and the good stuff that is preservative free tends to be quite expensive.

I buy my own now - just like I by-pass the doctor and do my own blood tests so that I get the ones I want. It's easier than arguing and getting stressed about it.

johare profile image
johare in reply to Fruitandnutcase

The doctors are set by certain guidelines as to what they are allowed to prescribe and it has to be the cheapest option on the market.

Fruitandnutcase profile image
Fruitandnutcase in reply to johare

I'm sure they are but I know someone who had one of the expensive ones prescribed by an NHS hospital consultant, got it from her GP a few times then had difficulty getting it. She contacted her consultant and the consultant sorted things out for her.

If you don't get on with the preservatives that are in the cheaper drops then you really do have a bit of a problem.

johare profile image
johare in reply to Fruitandnutcase

Yeh it is different if the consultant prescribes it, but GPs are limited. Ive been through loads and buy it myself now.

Bailybiscuit profile image
Bailybiscuit

I use Hyaback drops as recommended by my glaucoma nurse, they seem much better than all the others i have tried.

Trish1006 profile image
Trish1006

My new eye doc put in moisture beads in the corner is my eyes which lasts 3 months. They been in a month and help tremendously. I also use Restasis too.

Alderess profile image
Alderess in reply to Trish1006

How often are moisture beads replaced? Sounds interesting.

Trish1006 profile image
Trish1006 in reply to Alderess

Once every three months I was told.

Alderess profile image
Alderess

Thanks everyone. I have been buying Hycosan plus which are better than Hypermellose. I've used Optive in the past, also better. I think I'll try the Theolose Duo. The info about it suggests it should be helpful.

I have been going to Moorfields for Uveitis, but it isn't that this time, so don't worry. If I have any hint this is serious/not self treatable, I'll be back to Moorfields. All good wishes and thanks again for the suggestions. It's great to hear from folk who genuinely understand. Susan (Alderess)

Fruitandnutcase profile image
Fruitandnutcase in reply to Alderess

Sounds good. If you've got uveitis and been to Moorfields you'll have a very good idea of what you're doing. I'm always amazed at how agonising something as seemingly innocent as 'dry eyes' can be. Hopefully the Theolose Duo works for you.

sopainful profile image
sopainful

I have severely dry eyes & ended up having a punctal cautery. Now only need eye drops 2-3 times per day ( much improved).

Your GP or Optician can refer you to an Opthalmic Surgeon who can do the cautery for you.

Highly recommended!

Hope your eyes let up soon.

Alderess profile image
Alderess in reply to sopainful

Thank you

Flutterbug profile image
Flutterbug

I have Sicca Syndrome (dry eyes) with my RA. My Ophthalmologist and Optician both told me to use Hyabak eye drops as they are preservative free, so I can use them as many times per day as I need to. I get it on prescription from my GP but you can also buy it without a script. Along with simple eye ointment to put in at night, it's gloopy like vaseline and very lubricating.

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