Warm welcome, Hopeyj19! : . Warm welcome, Hopeyj1... - NRAS

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Warm welcome, Hopeyj19!

Kai-- profile image
11 Replies

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Warm welcome, Hopeyj19!

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Warm welcome, Hopeyj19! 🌺 🌞

Well done on finding a process that's working well for you. 👏 👏 👍

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[Please 🙏, kindly, don't be put off by this initially peculiar(?) reception. 😳 😮 🙃 ]

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There are dietary/ lifestylers (PPers, AIPers, & variety of approaches) about. 👍 (We exist. 🤗 You'll know us when you see us. 😊 😌 ☺️ )

Please feel comfortable sharing amongst those of us who genuinely interested in what works for you. 🙏

(We're all here to learn from each other. 🙏)

_______

The Internet's a pretty big place — lots of wide open spaces for all of us to share in peace (without any toes being stepped on). 🙏

Thankfully, HU (HealthUnlocked) & NRAS allow us to peacefully share this space. 🙏

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Perhaps, kindly consider this 'unique reception' 😳 😧 😨 in the framework of a 'friendly hazing', much in the spirit of a Pythonesque 'public stoning 😉 :

m.youtube.com/watch?v=MIaOR...

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😂 😂 😂

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You've supportive friends here, so kindly do not feel alone or 'put off'. 🙏

And, have a hearty laugh at some of the 'goings on' & please, please, take none of it personally. 🙏

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Nice to see a warm ☀️, cheerful 😊 disposition joining the forum.

Delighted to have you on board, dear lady. 🙏 🌺 🍀 🌞

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Kind regards, ☺️

Kai

healthunlocked.com/user/kai...

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I tried to place this note as a 'Reply' under your initial post 'MY RA' ( healthunlocked.com/nras/pos... ) but was unable to, unfortunately. So, hopefully you'll stumble upon this post as a warm welcome from all of us. 👦 👩 👱 👵 👴 . . .

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Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

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Kai--
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11 Replies
Kai-- profile image
Kai--

Ahh . . . now here we go . . . bit of a warmer, more fitting, reception for you, Hopeyj19: "Here comes the sun":

m.youtube.com/watch?v=bgiQD...

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allanah profile image
allanah

Hi m nice to see you here. I hope you get as much help from the others as I do.

Nice pics Kai x

Kai-- profile image
Kai-- in reply to allanah

If not mistaken, think this is pic from Hope's backyard, if not mistaken, allanah.

Hopefully, 'Hope' will pop by & clarify for us. 🙏

Hmm m m . . (scratching head) front yard maybe . . ? 🤔

(A lot of mowing either way . . . 😂 🙃 😳 )

glenb profile image
glenb

welcome, was a bit rocky that reception. i got blocked and am not allowed to say anymore on your thread..... sorry

Kai-- profile image
Kai-- in reply to glenb

Thank you kindly for your thoughtfulness, glenb. 🙏 😌

If Hope feels comfortable enough to find her way back here (after that 'shell-shocking' (🐚 😱) reception) I think she'll appreciate your friendly welcome, glenb. 👍

Kai-- profile image
Kai--

Ailsa Bosworth, NRAS CEO, has noted in a post (ironically/ fortuitously(?) named in this context) 'Bit of an assault?! ': healthunlocked.com/nras/pos... that:

. . . This forum is not a place to promote any specific products, dietary or otherwise, but a safe space for people to talk about their experiences and gain mutual support. Diet can play a part in easing or exacerbating RA symptoms but what works or doesn't work for one, cannot be generalised over a whole RA population. . . .

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Hope was kindly sharing her personal experience (I believe) not promoting anything. My understanding is this forum is supposed to be:

" . . . a safe space for people to talk about their experiences and gain mutual support."

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Kai-- profile image
Kai--

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If you ever return to this forum or happen to see this post, please be aware this (below) was my reply to you & you're welcome to PM (Private Message) me if you'd like: support.healthunlocked.com/... 😌 🙏

Thank you kindly for taking time to share your wife's experience with us. Please be assured, you & you're beloved are not alone. 😌 🙏 🍀 🌺 🌞

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Kai-- profile image
Kai-- in reply to Kai--

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If you're interested in the content of 'onesizefitsall' post 'The end of RA...?', the text is now under post Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins ( healthunlocked.com/cure-art... toward bottom of page) at Cure Arthritis Community forum.

Kindly take it 'in context' of what EmmaS-NRAS Administrator has noted about its content at 'Updated NRAS Community Guidelines' ( healthunlocked.com/nras/pos... toward bottom of page):

. . . I've had a quick chat with the other admins and we're all in agreement that even if the post hadn't been removed (either by the user or HU) then we would have taken the same action so feel it is not appropriate on this occasion to re-post.

The problem is not with the general content of the post but that they were advising people on what to do and the information, such as NICE not being allowed to suggest diet to anyone, was untrue. It’s not that they couldn’t have put a post up about how diet helped their wife's psoriatic arthritis, they just can’t suggest that people are struggling ‘unnecessarily’ on medication and that this would cure their condition. It’s all in the phrasing! The reason we were looking to remove rather than edit is that we took issue with so much of it that in order to stay, it would really need to be rewritten by the author rather than heavily edited by us. . . .

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Kindly consider reading the text of 'onesizefitsall' FIRST (over at healthunlocked.com/cure-art... ) to place the following 3 Replies 'in context' & to (hopefully 🙏 ) make sense 🤔 of the sequence of Replies. 👍👍

.

[Aside: That's a (significant?) problem when 'Replies' ✨disappear✨ . Anything that 'follows' the deleted entry 'makes no sense' 🙃, because it's 'ripped out of context'. 😯 😳 Perhaps "greying out"(?) the 'offending entry' would be a more 'reasonable(?)/ thoughtful(?)' workaround(?) rather than removing the entry in its entirety? 🤔 Probably an HU (HealthUnlocked) overall forum 'functionality' query for HU to possibly consider for all HU forums where deleting Replies & Posts is practiced? 🤔 ]

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"The end of RA..." (is nigh)⁉️ 😃

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😄

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Thank you kindly, PhD Chemist (biochemistry 👨‍🔬 & genetics background ) & loving husband 🤵, onesizefitsall, for sharing your experience. 🙏 😌

Please let your beloved Sharon 👰 know she joins with fellow NRAS WFPB-ers andyswarbs & Shaun94 in improving/ healing. 👍👍

Please keep sharing your beloved Sharon's experience, onesizefitsall. 🙏

There are people eager to hear/ learn about her experience & the realistic hope that's open to so many of us.

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Those of us with experience, live in hope that "truth will out" one day. ☺️

Unnecessary suffering will fade into past & anyone genuinely interested in pursuing a dietary/ lifestyle (d/l) approach will do their research 👩‍🏫 👨‍💻 & not be deterred from exploring 🕵️‍♀️ 🔎 d/l for themselves.

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After all, so many of us are improving our conditions via food & lifestyle changes. 🤗

We can't all be relegated to the pile of merely 'lucky few'. 😳 🤔

[Yes, with respect for individuals for whom d/l processes do not work readily, there is absolute understanding, compassion, no 'blame', etc. Yet, equally, for those who have had good fortune with d/l, I'd hope the same respect, understanding, compassion, lack of 'blame', etc. would be equally afforded. 😌 🙏 ]

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⚖️ ☮️ ✌️

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Wishing you & you're loved ones 👨‍👩‍👧‍👦 continued good health, onesizefitsall.

Please take good care. 🙏 🍀 🌺 🌞

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Oh . . . I respectfully disagree with you on 1 point.

. . . . You are a saint. 😇

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(Kindly 😌 , wear your halo 💫 with pride, dear man.)

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🙏 🍀 🌺 🌞

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Kai-- profile image
Kai-- in reply to Kai--

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Merely supplemental info supporting/ re-affirming your & Sharon's experience, underscoring the resources you've kindly noted:

Dr. Michael Greger . . . : healthunlocked.com/cure-art...

What the Health film: healthunlocked.com/cure-art...

. . .Whole Foods Plant-Based Diet/ Lifestyle . . . & 'Forks Over Knives': healthunlocked.com/nras/pos...

. . . John McDougall,. . . Michael Greger: healthunlocked.com/nras/pos...

Paddison Program . . . : healthunlocked.com/cure-art....

Why Does the Medical System Ignore the Importance of Diet? . . .: healthunlocked.com/cure-art...

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Kai-- profile image
Kai-- in reply to Kai--

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Aside: don't know if you & Sharon would ever consider sharing your story over at other forums as well? 🤔

Arthritis Action ( healthunlocked.com/arthriti... )

Cure Arthritis Community ( healthunlocked.com/cure-art... )

I think both of these forums would have participants interested in learning about Sharon's experience.

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And, personally, I'd love to hear 👂 (& see 👀 ) Sharon's story in her own words, from her own mouth 👄 on video 📹 .

Don't know if that 'type of thing' interests either of you? 🤔 🤔

[I follow PP podcast & see (& continue to learn from) many, many wonderful people around the world 🌍 🌏 🌎 doing extraordinarily well.]

Don't know if Sharon & you would ever consider doing such a podcast? 🤔

You could be the first husband wife 🤵👰 interview!! 😁

Merely idea 💡 🤔 , floated out into the universe 🌌 . . .

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🙏 🍀 🌺 🌞

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"The end of RA..." (is nigh)‼️ 🤔

(There is realistic hope. 🤗 )

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Kai-- profile image
Kai-- in reply to Kai--

.

If you're interested in the content of 'onesizefitsall' post 'The end of RA...?', the text is now under post Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins ( healthunlocked.com/cure-art... toward bottom of page) at Cure Arthritis Community forum.

Kindly take it 'in context' of what EmmaS-NRAS Administrator has noted about its content at 'Updated NRAS Community Guidelines' ( healthunlocked.com/nras/pos... toward bottom of page):

. . . I've had a quick chat with the other admins and we're all in agreement that even if the post hadn't been removed (either by the user or HU) then we would have taken the same action so feel it is not appropriate on this occasion to re-post.

The problem is not with the general content of the post but that they were advising people on what to do and the information, such as NICE not being allowed to suggest diet to anyone, was untrue. It’s not that they couldn’t have put a post up about how diet helped their wife's psoriatic arthritis, they just can’t suggest that people are struggling ‘unnecessarily’ on medication and that this would cure their condition. It’s all in the phrasing! The reason we were looking to remove rather than edit is that we took issue with so much of it that in order to stay, it would really need to be rewritten by the author rather than heavily edited by us. . . .

.

.

Kindly consider reading the text of 'onesizefitsall' FIRST (over at healthunlocked.com/cure-art... ) to place the previous 3 Replies 'in context' & to (hopefully 🙏 ) make sense 🤔 of the sequence of Replies. 👍👍

.

[Aside: That's a (significant?) problem when 'Replies' ✨disappear✨ . Anything that 'follows' the deleted entry 'makes no sense' 🙃, because it's 'ripped out of context'. 😯 😳 Perhaps "greying out"(?) the 'offending entry' would be a more 'reasonable(?)/ thoughtful(?)' workaround(?) rather than removing the entry in its entirety? 🤔 Probably an HU (HealthUnlocked) overall forum 'functionality' query for HU to possibly consider for all HU forums where deleting Replies & Posts is practiced? 🤔 ]

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