Benepali

[Bully915]

Hi all hope you are all well I have been on benepali for nearly 4 months now but don't feel as if it is working yet, was diagnosed about 4 years ago and take mtx 25mg weekly as well as folic acid and sulfasalazine 7 tabs daily. but my bones ache every day and night is this normal. billy

[Horsemadhere]

I've been on it a similar length of time. I also take hydroxy, leflunomide and pred. (not sulfa tho)

I think there has been an improvement in my fatigue, I feel I can do a bit more and sometimes even stay up past 8 o'clock!! But in terms of my pain I haven't really seen much improvement and the past week or so my hands, wrists, toes and ankles are probably worse!

I was hoping it would be a miracle cure, but for me, not yet.....

[Bully915 in reply to Horsemadhere]

Im the same dont have as much swelling just the pain in joints

[28maggie11 in reply to Bully915]

Been on it for six months but not great. Started on mtx 7 and half 3 weeks ago but still getting worse. Dont cope well with mtx

[LizzieR]

Hi,

Me too. I was hoping for a miracle but... Is it possible that Benepali makes joints worse?! I have PA in all joints. I gave up work- feels that everyone manages to work through it but I'm a wreck! I'm on mtx as well

[Bully915 in reply to LizzieR]

Yea a know was hoping it would be a miricle cure get back a normal life and enjoy hobbies again

[Bailybiscuit]

I tried it but I got worse and wasn't able to lower my steroids below 13.5