Hi. I just wondered, was anyone here offered any kind of counselling or similar when they were diagnosed?
I was ok at first, but lately I've found it harder to comes to terms with as it sinks in.
I feel like a total fraud because my condition isn't even very severe, but it's enough to affect little things every day and I really struggle to accept I will never return to 'normal' (whatever that is). I'm in my 30s.
I don't feel as though my doctors get it at all. I could just do with talking to a counsellor, even once, to get some things off my chest - the hurt I've felt at friends who haven't been supportive; the harm caused to relationships by all those months of fatigue before I was diagnosed; the impact it has on my ability to do my job; the anxiety over every test result awaited; the realisation I'll probably never be able to get pregnant because of the medication; the being fobbed off by doctors for so long who then changed their minds and didn't acknowledge the hurt and anxiety they'd caused.
But I'd feel like an idiot for suggesting it and no doctor has ever given me the impression they think my condition is a big deal at all. They write me a prescription then leave me to get on with it, telling me to come back six months later.
I really hate self-pity, but I fear that's what this sounds like. I know there are many people far worse off. In fact, I feel I've been lucky with my life generally. But just really struggling while this is so new to me.