Back to the drawing board 😩: It's back to the drawing... - NRAS

NRAS

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Back to the drawing board 😩

bernese1225 profile image
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It's back to the drawing board for me again. Came off Orencia as it didn't work and made me feel ill. Rheumy put me back on Cimzia but I came out in hives all over my body after the 1st loading dose. He thinks I probably reacted to it when I took it the first time. I did have rosacea and hot flushes which I put down to menopause but looking back these did stop when I came off Cimzia.

I don't see Rheumy until May but I'm o managing to stave off a flare with only 5mg prednisolone. I know the half life for Cimzia is approx 14 days so it's definitely out of my system. I'll increase prednisolone if need to but I really don't want to as I've been on it for 4 years with no break. I'm going to try Golden Paste capsules to see if they help. Has anyone tried them?

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bernese1225 profile image
bernese1225
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helixhelix profile image
helixhelix

I'm sorry it failed you. Hopefully the next one you try will be the one for you. Is there any chance you can get your appointment brought forward? Seems a long time to wait.

bernese1225 profile image
bernese1225 in reply to helixhelix

Hi helixhelix, I rang the RA nurse when I got hives and she told me to stop Cimzia. She did say it was a long time to wait and would speak to my rheumatologist when he comes back from his skiing holiday. That was 4 weeks ago, I think I'll give her another ring. I know the department is struggling as they're short staffed so think appointments are few and far between.

helixhelix profile image
helixhelix in reply to bernese1225

No reason why you can't be the one to get one of these appointments even if they are scarce..... Little children know very well that pester power works, so get pestering.

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