Quick question : Ok hi everyone just a quickie I have... - NRAS

NRAS

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Quick question

Oxopinkyblue profile image
18 Replies

Ok hi everyone just a quickie I have been told to go back on full dose of sulfasalzine 4 tabs after I weaned myself down to 3 tablets with drs permission anyway my question is do I just start taking it right away ?

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Oxopinkyblue profile image
Oxopinkyblue
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18 Replies
Amhoarten profile image
Amhoarten

If you've been taking three tablets a day you should be ok to go up to four straight away I should imagine. When I started on it I was on two tablets, then three and finally four increasing one tablet a day each week. Was you ok of four before?

Oxopinkyblue profile image
Oxopinkyblue in reply to Amhoarten

Yeah was fine xx

woodstar1 profile image
woodstar1

Not sure what a full dose is, I take 4 a day my pal takes 6. Just wondering what is the max full dose? Good luck anyway, hope it works out.

nomoreheels profile image
nomoreheels in reply to woodstar1

2,000mg to 3,000mg for RD I think woodstar. So that would be 4 or 6 tablets divided during the day. Does your friend have RD or active Ulcerative Colitis maybe? I believe the max daily dose for that is 3,000mg or 4,000mg a day. In an acute attack UC sufferers can go up to 4,000mg to 8,000mg tablets a day (1,000mg or 2,000mg 4 times a day).

woodstar1 profile image
woodstar1 in reply to nomoreheels

Hi Heels, my pal has 6 and that's for his RA, that's all he takes besides his pain killers. Apparently he worked up to that but he's been fine and under control with that dose.

nomoreheels profile image
nomoreheels in reply to woodstar1

Long may it last eh?! 😀

woodstar1 profile image
woodstar1 in reply to nomoreheels

Indeed 👍👍👍

mamainacrowd profile image
mamainacrowd in reply to woodstar1

My Dr just prescribed 6 after I had been on 4 for a while. My symptoms are not under control. I also take Plaquinel, Celebrex, 20 mg Prednisone, and pain medicine. I think 6 Sulfasalizine is the maximum dose. Anyone have side effects from Sulfasalazine?

woodstar1 profile image
woodstar1 in reply to mamainacrowd

Hi, I'm on 4 at the moment, my Rheumatologist is considering upping mine to 6 at my next appointment. My pal already on 6 is absolutely fine on them, no side effects at all.

JennyA123 profile image
JennyA123 in reply to mamainacrowd

Yes I just stop taking them Really bad nausea all day and I was only on the 3 a day... could not take it any more.:. Good luck.

mamainacrowd profile image
mamainacrowd in reply to JennyA123

Thank you. Sorry it didn't work for you!

nomoreheels profile image
nomoreheels

I just increased it the day it was suggested I did. Unfortunately I had to reduce the dose again as I still had side effects, even when I got down to 500mg so I eventually came off it & changed to leflunomide. If you're unsure though I wouldn't think it would matter if you waited til Monday when you can ask your GP, or whoever it was who said to increase it, unless they're available tomorrow morning?

mamainacrowd profile image
mamainacrowd in reply to nomoreheels

Heels dear--what type of side effects did you have from Sulfa? If you don't mind sharing of course. 😊

nomoreheels profile image
nomoreheels in reply to mamainacrowd

Hiya MIAC, not heard from you in a while, how are you? No I don't mind at at all. The first obvious one was nausea so GP prescribed prochlorperazine (Stemetil). That eased it but then as I increased the dose & the longer I took it my mood was altering. I can't truthfully say it was depression, I was very low & disinterested if you understand, but my concern was I was heading in the wrong direction.

Is SSZ being considered for you? If so do please remember that not everyone reacts the same. That said nausea is a very common side effect, depression not so much, that's listed as uncommon. I have been told to not take sulfa based meds again though.

mamainacrowd profile image
mamainacrowd in reply to nomoreheels

I do take SSZ. Have been at 4, prescribed 6 and then decided to "jump off" for a bit which was a month ago. The possible side effect I wondered about was to the eyes. My eyes were (and still are!) so itchy and bothered. I wondered if it was from SSZ but since I still have eye issues, that wasn't it! I have been spending most days in bed because I feel unwell, so, I am going to return to taking the SSZ again. Thank you for asking about me! I feel choked up at that. No one anywhere has asked me in a long time. I am depressed.

nomoreheels profile image
nomoreheels in reply to mamainacrowd

I'm very sorry to hear that. My first thought was is it related to SSZ but then I would. I do wonder though how many are affected similarly as a result of the disease, unless it's a recurring problem?

I don't recall anyone with your specific eye symptoms on SSZ but I'd definitely mention it to your Rheumy, GP or optometrist, they can refer you on to an ophthalmologist if need be. It must be so uncomfortable on top of existing eye troubles. Maybe you need a med review anyway being so unwell? Thinking could it possibly a build-up reaction to one or other of your meds.

Take care & do keep in mind we're here to talk to whenever you need us. Hugs ((x))

mamainacrowd profile image
mamainacrowd in reply to nomoreheels

Thank you NMHeels. For your suggestions and for caring. I appreciate the hugs too!

Mall profile image
Mall

I took six tablets a day at one point. This I think is the maximum dose prescribed for RA patients. At this level I experienced problems with mood, depressive symptoms and reduced the dose to 4 tablets a day. I don't think this is as uncommon as the advice leaflet says.

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