And so the party starts all over again..... - NRAS

NRAS
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And so the party starts all over again.....

Already been asleep for more than 6hrs,so now I'm wide awake AGAIN!.... yep,definitely loving this latest flare,and all because I can't stand on my own two feet without falling over anymore 😩

I don't care what the weathers due to be like tomorrow,I'm going to get wrapped up and get out of this house for some much needed fresh air,otherwise I'll be going insane (again)😂Still,at least someone's happy that it's time to play again already 🐶😍😝

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Good morning NJK73. I am sorry you are battling a flare at the moment. I know what that feels like I'm in the middle of one right now. Been up for two hours after trying to kid myself into thinking I could will myself back to sleep.

Has the pain managed to subside a little since you have been up? Mine is raging on.

I know what you mean about wanting to get outside... it does help psychologically. I hit a wall of depression yesterday and the only thing that helped a little was getting out the house.

Xxx

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Morning Suki1088 Loraine121 The pain was intense.... the only way it subsided was because I'd taken so many oxynorm and OxyContin along with a handful of diazepam that I think I eventually passed out in a stupor😝 But after all that I'm wide awake again in less than 3 hrs... it's just bloody crazy how we can feel pain with the amount of meds taken,and mine are swapped regularly to make sure I don't get too used to them either?!

I'm laughing now,but I wasn't during the night - I think I went back to bed about 5.30 in the end,after a nice cup of hot chocolate and marshmallows (thank god for those little pod machines😊... oh,and the other half who made it for me 😊)

I've been fighting depression since this last flare started again,and things hadn't been too bad as I've been managing to get out of the house during the day with the pup and just nip around to mum's in the next road.... that way she gets her socialising with my parents three dogs,and I get out of the house,without having to venture far or worry about the state I look,but they've been having building work done and a new kitchen/diner fitted,so I've not been able to get around there last week due to the lack of room(living room filled with furniture and bits from other rooms) so I've just been sitting downstairs,and before you know it,I'm waking up after being asleep for anything upto 5 hrs with a cricked neck to boot🤕🤒 on wed I actually slept through in bed until 3pm - it was only Minnie barking to be let out for a p that woke me.... usually mog(my Maine coon half cross) wakes me if she knows I'm asleep when it's another time of day for me,she's almost like a therapy cat in keeping me alert😻 plus I've now got a stinking cold to contend with too(again,not enough fresh air.... I know I only went to mum's,but at least I'd nip into the garden with Minnie,or for a quick walk over the park on way home for her.

Fingers crossed I'm going back around there today.... like I said,stinking cold,so don't want to venture far,but minnie needs to play with other dogs or she'll think she's a cat before not too long!!

Hope you guys have a good and pain free day too

Nicki x

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Good morning, ,njk73

I hope you are able to get out to day sometimes just a little while helps , I too was lucky enough to have slept for about 5 hours.

I like the picture lol

Have as painfree day as possible,

Loraine x

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Morning hope you get out today and what a lovely wee pal too wake up to in the morning xxx

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Thanks popsmith1874

That's Minnie - she's a 14wk old Maltese ..... she may look cute but she's the 😈 In disguise!! Honestly,she keeps me on my toes so much.... especially when trying to walk from living room to kitchen...., I literally look like something from ministry of silly walks😂

I got her after a lot of research into the best breed to suit me now that I'm not as well or fit as I'd like,or ever likely to be again,so even on my bad days I can get away with letting her run riot in our enclosed garden(originally built for our much loved cats). Plus,she's my excuse on the days that I am fit enough to get out of bed,she gives me the excuse I need to get out of the house.... and up until this latest flare,it's been working - she's literally almost made my depression disappear.... it still rears its head now and then,as it does when we're all on a downer with our diseases,but in general I'd say I was about 90% better most of the time,and that can only be a good thing - like I say,it wasn't an easy decision,but as I now have the time to devote to a dog(I've grown up with them and even used to walk my parents for them when they were working and I was off with my back after my ops) I decided to go for it,and I'm so very glad that I did!!

Hope you have a good day today - oh,meant to ask,what did you think of the bathlift once you tried it out?? Aren't they just gifts from heaven?! Xx

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Yes used it for first time today , so don't need to bother my lovely wife who's been a gem to me, it just goes to show in life little things in life help so much 😬

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I jut lost my dog to cancer.I miss her so much I Don ever blog, so I don't know if I know how to

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Huge hugs coming your way xxx

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So,so sorry for your loss,huge hugs and thinking of you in this devastating time

Nicki x

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Hi

I think the weather hasn't helped

I've had more pain since December

Spoke to Rhuematology dept this week and had a steroid injection Friday

Didn't notice any change yesterday but feel much better today. Hope it continues

Also weather has improved today

Hope you feel better soon if not get in touch with the Rhuematology dept as they will help

Matilda

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Also hope you are able to get out today

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Thanks,hopefully just going to potter in garden doing bits that need doing(cleaning bird feeders etc again) and with the other half here I shouldn't overdo it this time like I did last time - what started out as a twenty minute job took me nearly three hours - I couldn't move for almost two days after😩 X

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Thanks Matilda_1922

I've actually got an appointment with the rheumy nurse on fri that's been booked for months,so fingers crossed she'll be able to sort things for me,and also try and get my consultants appointment brought forward as he booked me to see him in 10 months when I saw him last time... mind you,I was doing well then.... it was only a week later when someone rear ended my car in stationery traffic that my problems began again.... I think they call that Sod's law?! 😝

X

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I just love your doggie...... Awwwhhh!! Hope u feeling better ....pain is so hard isn't it?

I watched 'cake ' last night with Jen Anniston..,, she was incredible I thought....in the film she is hooked on painkillers and is in chronic pain.....was interesting.....

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Ooh,I haven't seen that film yet,maybe I'll give it a go..... if I can stay awake long enough😂

And yep,Minnie is pretty irresistible - I get stopped in the street constantly with her,and it even took me an hour to get around a pet shop when buying her food as people just wanted to stop me to have a cuddle with her and talk about her 😍

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I suspect the cold weather is flaring a lot of us... Darn, huh? Just be careful not to fall again (maybe take someone with you in addition to your really cute puppy?), and enjoy your time

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Thanks Hidden

Unfortunately it was a fall I had when getting clothes out of the wardrobe!! I have orthotics in my shoes which help so much when I'm out and about,and the falls have pretty much stopped then,but it's as soon as I get undressed to bathe,or changed and the fun starts - I literally am like a cartoon character that just goes sideways😝

Luckily the rheumy nurse appointment I thought was more than a month away is only a week away,so fingers crossed she can sort some bits for me,and the GP is chasing my podiatry referral for me(the original referral letter was sent out on the 29th Nov!!). Don't we just love how the NHS is now?! if they see your age,I'm sure they assume it's not important,and as I'm only early forties,they just assume I can 'get on with' a lot of stuff.... or at least that's the impression I get given at some appointments!!

And luckily enough there are always plenty of people out and about where I walk(even without dogs) the joys of living in the countryside 😊 X

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Ha ha - I know what you mean. For the longest time, EVERY time I went to my GP she would tell me that whatever was going on was just "part of aging". Sheesh.

Good to know that your appointment is soon, and that there will be many around when go for your walk.. Take care and let us know how the GP goes...

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Thanks,Ilwill do

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I hope by now you have been able to bundle up and get yourself out of the house for a while. A blast of fresh air, even if freezing, does a body the world of good I reckon. I managed to get into the garden briefly this morning. Bird feeders all clean and refilled, a little light weeding done and new bulb growth duly admired. Now spoonless, an afternoon of swearing another jumper into existence awaits.

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Thanks - I managed to get out and sort the feeders out,restock the roof garden (my partner used some Astro turf and with building a frame,made the top of my shed a little mini roof garden,so if I can't get out,I can still watch the birds up close from my bedroom window - I love him so much for the little things like that, that he does for me,and even building a little picket fence to go along where I had a couple of hedgehog houses,and putting up the fake ivy screening on it so that the hedgehogs have complete privacy,but also more protection from the elements and any predators that may have gotten in if the gate was left open by the postman or someone?! All done on a whim one Sunday afternoon. He's a real treasure to have around the house,as he's been in almost every trade going at some point in his working life,so can turn his hands to almost anything,and it always turns out so well too - like I said,even though he has his own demons to cope with(bipolar) he has been a rock for me when I've been at my lowest 😍.He's off out at the minute to get things needed to completely puppy proof the garden before I let the 😈 Loose out there,and also to put up another privacy screen along the top of our fence,as the wind has completely torn down our reeding the last few days😩.

I'm planning on getting out in the garden again tomorrow just to tidy up a few bits,which is why I didn't want to risk overdoing things today - been there,done that and paid the price far too often to want to do it again 😝

Glad you had your gardening done though - it does give you such a sense of pride when you step back to admire your work..., definitely makes the aching worth it from that point 😊

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Sounds like you have yourself a treasure, there as do I. What a kind, imaginative, thoughtful and skilful thing to do. I always say "pobodies nerfect" 'coz it's our imperfections that make us - us. Strictly between you and me, I only did the little bit of one of the raised beds I can reach from the path. Tomorrow is another day, though. I long to give the veg patch a good digging and planning the planting but there's time enough for that. Hugs

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What a little doll. I have a long hair Chihuahua and a Havanese. I gave my Pomeranian to a friend. He was high maintenance and one year old. He adjusted very well and is in Pomeranian heaven. He has become the pack leader. He also has two young men as companions. He is very happy. My girls love to walk but are happy laying around the house as well. They are happy I am not gone fourteen hours a day anymore.

I just got back from Mazatlan, and what a difference. My body definitely likes the sun. I had no morning stiffness, headaches or much pain. I hate the food but there are other warm climates lol. Sorry you are having a flare. Hope it passes quickly.

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Thanks - it happens to us all,unfortunately this one was due to my collapsed arch in my foot.... as soon as I take my Support's off or my shoes then I literally just fall over like a weeble😝

I bet your girls are loving having you home much more now - no animal should be left for that long,but unfortunately,we have to do these things in order to survive and pay bills.

The Pomeranian does sound like he was a bit of a diva.... I can sometimes see Minnie trying that,but I'm doing my best to put a stop to it as soon as I see it,and my cats certainly don't let her get any ideas above her station - she knows her role in the pack,which is half the battle I suppose?!

And yep,the sun does make us feel so much better - I'm a bit worried about flying though,as I used to blow up on a flight at the best of times,so I'm very wary of doing any flying now I've been diagnosed. Did you have any problems at all? Or is it all a myth? My consultant seems to think I'll be ok on a flight to NY(I really want to do a trip in summer,as I've already been around Christmas time) but I'm not convinced.... he didn't sound convinced himself and just said it shouldn't be an issue,but as he's not living with it,I'm not convinced in his answer!!

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But look who you have for company!, that cute little floofer.

Blessings

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Hmmm,that cute little floofer has had me awake since 12.30 as where she's had a sleepover at my parents when we were at the gig last night,she was so tired from running around with their 3 dogs that she physically couldn't stay awake when she came back this afternoon.... then lo and behold she wakes me up, as bright as a button not long after I'd dropped off😈 If she wasn't so cute I wouldn't be too impressed... just glad it's payback time later when she has to go vets for her last jab this afternoon 😜

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Oh bless her i hope she gets an ive been a brave girl sticker!. Due to NHS cut backs when i go for bloods i dont get plasters with teddys on anymore, but its ok because my phlebotamist draws a teddy on my plaster with biro, otherwise she knows i wont go, because no one can know ive been abrave little soldier without a teddy plaster.

Blessings

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Omg - that is the exact thing my partner does!!

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