Palendromic Rheumatism - RA - surgical procedures - NRAS

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Palendromic Rheumatism - RA - surgical procedures

mjoyner profile image
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I'm new to this site. My name is Marion -

Irish background living in Canada for 40 years!! I would like to speak with others who have palindromic rheumatism or take hydroxychloroquine or other DMARDs - looking at hip replacement and would like to hear other's experiences with multiple joint replacements??

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mjoyner
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allanah profile image
allanah

Just to say hi Marion! I haven't had joint replacement thankfully lol but take dmards and biologics. I too am from Irish descendants who moved to Glasgow , county Donegal I believe. I now live in north east of England , so lots of travellers throughout the years !

Em13 profile image
Em13

I'll also say hi, Marion. I'm new here as well.

I was diagnosed with palindromic rheumatism last December, but in January my diagnosis was changed to "early RA" following blood test results. I understand that palindromic doesn't cause erosion, but can develop into full-blown RA, or it can remain as purely palindromic. Or the two can exist side by side so you get to enjoy them both. Very confusing.

Anyway, I have been taking hydroxychloroquine since January, and will probably start a second DMARD next week. No joint replacements as yet though.

What part of Ireland are you from? My father was a Mayo man (albeit brought up here in England) and we still go over to visit extended family.

Caza profile image
Caza

Hi Marion & welcome, I have palindromic rheumatism & RD. I'm on hydroxy which I've been taking for four years now. Did they tell you to have an eye test before starting & then again every 9-12months? Can't comment on hip replacements,although both my hips are painful so one for the future I think. Take care

KSee profile image
KSee

Hello Marion, Welcome!

I have sero negative inflammatory arthritis according to my Rhematologist. I've been on Hydroxychloroquine for nearly 2 years now.

I agree with Caza....have an eye test before starting HXQ and then once a year. Let the optician know you're on HXQ. My optician also prescribed Hyabak eye drops for my dry eyes.

Sorry I have no experience with joint replacements but I'm sure you will get feedback from others who have been through the procedure on this site.

Love & Light 😎😎😎

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