Stopping meds: Hi on enbrel and mtx and been told to... - NRAS

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Stopping meds

alton profile image
6 Replies

Hi on enbrel and mtx and been told to stop meds by consultant for approx 6 weeks to see what happens ..Rationale??

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alton profile image
alton
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6 Replies

Eh?? Assuming your consultant didn't explain ... if so that does seem bizarre. Are you particularly well right now? Might this be remission? Or is it the case that your diagnosis is in question? Sorry for all the questions but I'd be scratching my head for sure.

Caspiana profile image
Caspiana

Hello. What was the conversation leading up to that decision? At the moment it doesn't sound rational to me. 😒

helixhelix profile image
helixhelix

As postie2 says, without any explanation it is bizarre! The three main reasons to stop meds are a) bad blood results suggesting that liver or kidneys are struggling with the drugs b) sustained remission so guidelines are to reduce drugs to see if it will hold without drugs c) the drugs not working any more either wrong diagnosis or just your body has stopped responding to them. Do any of those sound more likely than others?

Peecue profile image
Peecue

Why don't you contact the GP secretary or consultant secretary and ask what the reason is as you can't remember? It may be they can look it up in the letter or can ask consultant to explain again

alton profile image
alton

Hi sorry didn't qualify my question. I am have pain although on these drugs for a year or so ( although I don't expect to be completely painless cos then I would be in remission,right?) But then because the steroid depo doesn't have me doing cartwheels... I'm confused whether they are questioning my diagnosis or looking to change drugs. Didn't communicate very well on the appointment or on my initial question...Sorry frustrated altogether with the whole disease! I tried to ring Secretary today but nobody around so will try and clarify totmorrow.

Don122 profile image
Don122

Very strange. Should certainly not stop both meds at once.

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