Dry eyes: Hi, I went to my GP the other day as my right... - NRAS

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Dry eyes

Patsy-57 profile image
24 Replies

Hi,

I went to my GP the other day as my right eye was sore. She put some stain in it and said my eye was dry and the other one was too. Put on drops to put in through the day and a greasy cream to put in at night. I asked how long I had to do this she said for life.I have RA. Anyone else had this problem.

Patsy 57

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Patsy-57 profile image
Patsy-57
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24 Replies
popsmith1874 profile image
popsmith1874

Hi patsy I've same problem got RA and OA and was given eye drops for mine and has made a dirrerence

Patsy-57 profile image
Patsy-57 in reply to popsmith1874

Thank you only used mess 5 days and has helped.

Paula-C profile image
Paula-C

I was told before I was diagnosed that I had dry eyes when I first started using contact lenses, it was put down then to my age. At my last eye check I was told that they are very dry and was told to use eye drops everyday and every morning to put a warm damp flannel over my eyes for five minutes to stimulate my tear glands .

My RA nurse told me that my drugs, methotrexate and Enbrel will cause dry eyes and also RA itself does. Also been told that I've got the start of a cataract in my good eye. Not a happy bunny at all, needless to say that I've stopped using contact lenses . I bought the first few lots of eye drops but at over £11 a go I've now got them on prescription. xx

Patsy-57 profile image
Patsy-57 in reply to Paula-C

Thanks for your reply at my last eye test I was told I had the start of cataracts in both eyes. I thought at the time oh great.

beeckey profile image
beeckey

I have the same problem dry eyes and dry mouth spray for mouth and drops for eyes

Patsy-57 profile image
Patsy-57 in reply to beeckey

I have noticed a dry mouth will mention that when I see GP next week. Thanks

Caspiana profile image
Caspiana

Hello Patsy. I have had RA for about eight years. In addition I have Sjogren's syndrome which the doctor says causes my dry eyes. It is a terrible affliction as you know.I have to use drops constantly. Air conditioning and fans don't help. I find using a hearing pad sometimes helps to sooth the symptoms. Take care.

Cas xx 🌸

Patsy-57 profile image
Patsy-57 in reply to Caspiana

I just think can I add anything else to the list of ailments. Well maybe yes. Someone is having a laugh and going yeah send her something else to manage. Ha ha.

Matilda7 profile image
Matilda7

Hi Patsy, I was diagnosed almost 40 years ago with Sjögren's syndrome ie dry eyes and have lived with it far more successfully than with the RA!

I suggest you ask for a referral to ophthalmology to have it properly diagnosed. Do you also have a dry mouth? I don't luckily. I used to have an annual check up with the ophthalmologist but they don't seem to bother with that any more. I use eye drops during the day but not at night.

Patsy-57 profile image
Patsy-57 in reply to Matilda7

My GP said if things don't help will refer me .

rawillbebeaten profile image
rawillbebeaten

Hi Patsy,

I've got Sojourns as some of the others who have replied. I use eye drops constantly and you do get used to it, I have Celluvisc 1% and Eye Lube + a cream Vitapos for at night which sounds like the one you have. This is not to scare you, my dry eyes are at the far end of the scale - I've had a couple of RA flare ups affecting my eyes and the dry eyes contributed to those, I ended up with 4 days in hospital both times. The first time I should have gone in to the Eye Unit much earlier and have scarring on my left eye which means my vision is not good enough to read with. Both eyes together are fine, but I will never take a chance again. After the second flare in Jan when I did go fairly soon after the symptoms started, I had a small procedure in Feb to seal my tear ducts and keep the artificial tears in the eye for longer. My last check up earlier this month was positive and just another routine one in 6 months. Good Luck with it all and the RA

Best Wishes

Michele

Patsy-57 profile image
Patsy-57 in reply to rawillbebeaten

Many thanks not sure where I am on the scale too early to tell.

selina profile image
selina

hello - unfortunately a lot of us suffer that additional problem. Very unpleasant and not understood by others who do not have RD. I just use the gel and night time greasy stuff. A case of grin & bear it?

Cathy777 profile image
Cathy777

I have dry eyes too. I know hydrochloroquin can damage eyes and you need regular checks. My optician says cateracts have began to appear and I know its since I been on this drug.

Patsy-57 profile image
Patsy-57 in reply to Cathy777

I take this too and also have regular checks. Thank you for your reply.

Paula-C profile image
Paula-C

Reading about cataracts I do wonder if they can be caused by the drugs that we take. Since I started Enbrel I was asked if I would fill in a 6 month diary which I have to report any illnesses etc, this is then sent to Manchester university. Seems to me that that are tracking things due to anti tnfs, beings that they are still a relatively new drug. i've just sent my last one off ( you do it for three years) and I noticed that you have to put down if you've been told you've got cataracts. I have told my specalist nurse that I've been told I've got the start of one, but she said it's nothing to do with RA, this was though before I filled in my diary.

Patsy-57 profile image
Patsy-57 in reply to Paula-C

I sometimes think anything else you want to send my way. I think my hobbies now include medication taker. Thanks for your reply.

Cathy777 profile image
Cathy777 in reply to Patsy-57

Yep that sums it up! My whole life seems to be about drugs. I know too much about drugs I had never heard off before I got ill in 2011. Also having to research things cos I don't always trust the docs . my drugs include cancer drugs along with RA drugs and they sometimes clash so I am constantly checking things. I get so tired of it all sometimes.

Patsy-57 profile image
Patsy-57 in reply to Cathy777

Know that feeling well honey. I can remember when I just took an anti inflammatory drug only and thought I took too many. Now adding three medications more to an already bulging box doesn't even bother me. I just think bring it on!

Patsy-57 profile image
Patsy-57

Thank you I do like this site. Lots of good advice.

Jenharri profile image
Jenharri

Yes I have same. Psoriatic arthritis causes this. They get so stuck the pain is so awful when I try to open them. Drops during the day and drops on my night cabinet 😩

Jen x

Patsy-57 profile image
Patsy-57 in reply to Jenharri

I have to back to the docs in another week so she check on them and decide if I need a referral to ophthalmology.

Jenharri profile image
Jenharri in reply to Patsy-57

I had a referral to ophthalmology. I had severe dry eyes & Bletheritis. I scrub my eyes with the tips of my fingers with a gentle eyewash at least twenty times this helps the Bletheritis. It his horrible. I watched how to do it on You Tube it helps a lot.

Wishing you clear eyes

Jen xx

Patsy-57 profile image
Patsy-57 in reply to Jenharri

The first time I put the eye drops in I realised just how dry both my eyes had been. The one I put in at night is really good.

Patsy 57

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