Steroid injection not working : I was given an... - NRAS

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Steroid injection not working

thompsonp profile image
17 Replies

I was given an injection a week ago and it hasn't helped at all is that normal. Also I've been off work for 5 weeks as I cannot walk can they get rid of me as there are redundancies in our office as we have just been taken over. I've been told this is a flare but it seems so long.

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thompsonp profile image
thompsonp
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17 Replies
helixhelix profile image
helixhelix

You probably don't want to hear this, and I'm sure you feel as if you have had this pain forever, but it is still very early days for you. I think you've only been taking the drugs for 6 weeks? So your RA is still uncontrolled.

But it's a shame that the steroid injection didn't work for you. Sometimes they don't. But tell your rheumy team anyway just in case they only gave you a very small dose. is is feet or knees that are stopping you walking? and have you told your rheumy team about this as well, as perhaps there's something that can help. Do try to keep moving - even if it's just sitting down exercises - as otherwise you'll loose muscle tone in your legs and that will make recovery harder.

There are very strict procedures for employees that are off sick, so make sure you keep your employer informed and send in fit notes so they can't say they didn't know what was happening. Sorry not to worry about that right now and concentrate on looking after yourself so your health improves.

thompsonp profile image
thompsonp in reply to helixhelix

Thanks a million it was a high dose 160 whatever that means I just wish I could walk. I work for a law firm not sure what their policy is for long term sick. Thanks for advice

helixhelix profile image
helixhelix in reply to thompsonp

A high dose means it should work! And at least working for a law firm they should know about employee rights and the Equality Act - so no excuses for them not to behave properly.

Are your knees squishy and swollen with fluid? If so, tell your rheumy team as they can remove the fluid which really helps.

smithfield profile image
smithfield

Hi thompsonp.

Sadly with steroid injections that can sometimes be the case I had one a couple of weeks ago and it did nothing.I was so looking forward to a couple of pain free weeks and being able to do things. I was so disappointed ,in fact I am being polite because I swore a lot.

I suggest you contact your GP or Rhuemy team. Do you take oral steroids ? Because it was suggested to me to increase them for a short period. With your GP's permission of course.

Do not feel qualified to comment on your work situation. But 5 weeks seems a short period of time and if you have kept your employee's informed and sent in your sickness certificates hopefully you will be ok. But take some advice it will stop you worrying. Do you belong to a union?

Best Wishes

Smithfield.

,

earthwitch profile image
earthwitch

I've had injections where I really didn't think it had worked, but then realised later that it had lifted things a bit, even if it wasn't a miracle. hang in there, and hopefully your treatment will start to kick in soon.

Moomin8 profile image
Moomin8

Hi, I'm sorry to hear of your concerns. Just thought I'd let you know: injections (I've had 5 or 6 of them in 5 months) have done nothing for me either! However, prednisolone has. I've had 2 courses of them: 7 days of 30mg. I know they're not brilliant for you...but the relief (albeit short) is welcome. I'm currently working my way through the arsenal of anti-inflamatories! Etoricoxib atm...the jury is out and waiting for a positive response.

Regarding work, I haven't returned yet this year! I'm lucky that my work are very understanding. Do you belong to a union?

thompsonp profile image
thompsonp in reply to Moomin8

No union it's a law firm and we've just been taken over and there are a lot of redundancies happening

thompsonp profile image
thompsonp

Thanks it's my knees that are the worst thanks for your advice

farm123 profile image
farm123 in reply to thompsonp

May be worth a word with your rheumy nurse as for me a joint steroid injection directly into knees (after draining) works much better than a general injection into the bottom. You need to rest afterwards to allow it to work fully even to the point of making sure you do not have to walk far to the car afterwards - legs up and maybe some ice. Farm

Bailybiscuit profile image
Bailybiscuit in reply to farm123

Interesting you say you need to rest afterwards. The nurse who booked my injections in told me I would have to rest but the one who did them said no need as long as I didn't go on a long hike.( As if I could)

farm123 profile image
farm123 in reply to Bailybiscuit

I have had so many done over the years that I try and make the best of each one - how much difference I don't know. My rheumy nurses have always encouraged me to rest after. Farm

Bailybiscuit profile image
Bailybiscuit in reply to farm123

If I have any more I will rest but how odd two nurses from same department contradict each other.

Mandalou profile image
Mandalou

Hi thompsonp.

So sorry to hear you are really going through it.

Just out of interest have you been diagnosed Sero-negative or Sero-positive or do you have Psoriatic Arthritis or something else.

It's only that I'm Sero-negative RA and oral steroids work like a miracle for me but steroid injections are totally worthless, zero effect.

As work is so completely crucial to you right at this moment in time. IMHO I would dance with the devil so to speak and ask for some oral steroids to get you through until you are more sure of your long term plan and to tide you over until work is more settled ie threat of redundancy removed.

Best of luck to you.

Mx

Bailybiscuit profile image
Bailybiscuit in reply to Mandalou

Thompsonp I take oral steroids as I have been taking them for polymyalgia for two and a half years. I know they help but as it wasn't until recently I was actually diagnosed with Seronegative RA I have always taken as low a dose as possible for my pmr ( for which blood results have been good lately). I wonder if I should really be on a higher dose for my arthritis? I don't normally go above 15mg but I am never pain free. Very occasionally I have been on 17mg for two days.

Bailybiscuit profile image
Bailybiscuit in reply to Bailybiscuit

I should have addressed that to Mandalou, sorry.

Mandalou profile image
Mandalou in reply to Bailybiscuit

Hi Bally, so sorry I don't have time to reply tonight, life is hectic at the moment as I'm looking after my poorly Mum. Bear with me and I will get back to you tomorrow evening.

Mx

Taniaboo profile image
Taniaboo

This is my 6th week off work

I’ve 2 bulging discs pressing on nerve, have sciatica and numbness in my calf muscle and toes

Work won’t let me return on light duties as it isn’t a Work related injury

I’ve had 2 injections into spine that have only slightly relieved the pain

I’m concerned, I’ll be forced to leave my work and not return

I see doctor today, it’s so frustrating, I just want to be pain free

Also the anti inflammatories don’t seem to be doing anything

I’m on ibuprofen 400 mg 3 x a day and lyrica 75 mg x2

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