hi all, have seen the consultant today and he asked how I have been since Christmas, well it was all down hill, as I said I hurt all over and the tiredness is unbeleiveable and I said when I come in from work have to go to bed for 3 hours and then when its bedtime sleep another 7 hours and on my days off I sleep for 14 to 16 hours so all I do is sleep and work and be in pain.
So he said to go back onto 5mg steroids for 2 weeks and then 2.5 for a few months to see if it makes a difference. I asked if the tiredness would stop and he says yes, so will wait and see.
am hoping you are all doing good on this lovely sunny day and hope it continuous being this warm and sunny.
Thanks for listening.