Just back from seeing consultant. I laid it on the line with my poor painful feet ( incidentally found some very comfy Skecher shoes after becoming disillusioned with podiatry and their attempt at shoes ) he checked my joints out and announced that things are still active. I have had a steroid injection today and the mtx increased to 25mg ... to start injections instead of pills. He said that if things dont improve over time i might have to see a surgeon for my poor old feet but they wont do anything whilst the R A is active. I now gave to do the waiting game again to see if it is effective.
My main concern is work and my lifestyle. I am very active and work part time... three days a week..8 hours on my feet a day doing a job i love. Up until now i was full of resolve that this R A wouldnt get in the way of my life but it seems that i may have to curtail things a bit ..... which really really cheeses me off!
Rant over.
Written by
Wilroda
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Try to think of it as an opportunity to take stock of your life and what you can do with it that doesn't involve a lot of time on your feet. Is there any way your job can be adapted so that you can sit down and do it? Is there part of the job that can be done in a more office based way? Etc.
Thanks for your support. Today I had a chat with my manager at work. She was quite sympathetic and I don't think she realised how bad things have been. I havent mentioned my aches and pains much preferring to keep things to myself which maybe hasnt been a good idea. .... I dont like to make a fuss and maybe a burden. The steroid injection is beginning to work so we have agreed to review my hours per day in a month or so. I also gave her the NRAS leaflet for employees on RA which she appreciated.
Funnily enough chatting to family was helpful but actually writing it down for you all to see has been more help.
Isn't it crazy that Biologics aren't available until all else has failed and one is really poorly. Would be so much more sensible, and better for the economy, to make them available sooner and to keep people working effectively, not to mention the emotional distress suffered whilst waiting to feel better.
Can't fault your rant! I too am in a lot of pain in my feet & get frustrated when it limits what I can do. I'm seeing consultant next Thursday so, hoping, well just hoping!? X
I do hope you get some help with your feet on Thursday. Let me know how you get on.
Since the steroid injection mine are alot better... I only wish that this was a permanent solution but at least I have some respite from the pain for a few weeks. X
Hi don't post much but I have been going through this for 2 years and my consultant wouldn't listen, had insoles , changed my foot ware still no joy. It's like walking on sponges with a handful of stones thrown in pain is awful eventually I went to my gp who sent me for ultrasound and they found I now have mortons neuroma which is swelling of the nerves near the toes finally been referred to see surgeon next week I hate this god dam awful disease had op number 8 last month on my elbow now it's looking like more to come. So fully sympathise with you
I too went to my gp a few years ago with foot pain. This was before things really kicked off. I had x rays and ultrasound too. They were convinced it was moretons neuroma but there was no evidence on ultrasound so i was just advised to take naproxen for the pain.
I do hope you get some resolve with your poor feet. I like your analogy to a sponge with stones in it! Spot on! X
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New & waiting for consultant diagnosis. 
Consultation for Transplant Decision Tomorrow,
My 1st App with the consultant (not so straight forward )
