Hi all I have just been to see the rumey nurse today and I can continue to taper of steroids and am now just going to start on 2mg tomorrow and then next month 1mg. am so pleased, I did have an steroid injection 4 weeks ago and found it has worked brilliantly. They did stress that if I am finding coming off the steroids that I start to flare to ring the nurses, she said do not wait until your next appointment but ring us. she must have read my mind because normally I would just wait until my appointment instead of ringing them. I am feeling good with not much swelling that I could find. They gave me wrist splints today and they said to use them at work when lifting equipment, will see how that goes as work as am s Breakfast chef and do a lot of washing up.
She did say once I am off the steroids and if there is still some swelling that I will be going on some injections to run along side my other medication. I said hope I do not need it.
I have been on MTX a year now and I find it does the trick, but was wondering if anyone else has had hair loss as am finding still a lot of hair dropping out and around the back of my head there are some patches of very thing hair which I only noticed last week. I am on sulfasalazine, hydoxychloroqine amongst other medication.
So at this moment am feeling pretty good and tomorrow my partner and I are going to Scarborough for the weekend.
Here is hoping you are all doing good today.
Thanks for listening.
Carol
