Every 2-3 months, I get a few days of very severe RA symptoms and then wake up with a sore throat, unrelenting headache, swollen glands on left side of neck, ear pain on left, swollen left eye and swollen roof of mouth. Needless to say, these symptoms make me feel horrendous.
I have seen every dentist in my local area (!) who prescribe antibiotics as they say it's an infection (I'm not entirely sure I agree) but they can never find where. The overall opinion is that it's related to my jaw as my left side is the worst affected side. Maxillofacial consultant is the top man in London, so I trust his opinion and he said it's not connected. He said that the left is only marginally worse than the right. He admitted that he doesn't know the cause and the only treatment option is to proceed with total jaw replacement surgery.
I'm posting on here on the off chance that anyone has been through similar and found a cure/cause. I know my immune system has taken a battering since adding anti TNFs to the mix but this is ridiculous. Rheum is trying to get the right balance between controlling my aggressive RA and catching every bug going but this is proving challenging.