It's taken me a long time to find a combination of medication that works. I have occasional flare ups but more importantly, the joint damage has been halted in it's tracks. I thought "I can't put a price on that" but as it turns out, I can. I am picking up either bacterial or viral infections every 6 weeks or so. I am being knocked down, harder and harder with each bout of illness. I'm currently dealing with a nasty infection that appears not to be responding to oral antibiotics and it's causing concern for GP and rheum nurse. I'm exhausted, fed up and irritated with there always something wrong with me.
It's been acknowledged that my RA is aggressive and unusually erosive for someone who is seronegative. Therefore, in order to get a good quality of life, I need an aggressive treatment regimen. The trouble is, my immune system is taking such a beating and so, I'm not getting a good quality of life. I'm scared of adjusting my medication and my rheum didn't seem that keen to. However, something has to give but which one? Being ill constantly makes me tired, weak, miserable and in pain. Having active RA makes me tired, weak, miserable and in pain. It is always going to be a lose-lose situation?!