Overweight : Hi I'm on tocilizumab selfself... - NRAS

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Overweight

nesantos profile image
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Hi I'm on tocilizumab selfself-administself-administered injections and hydroxy chloroquine. Has anyone on tocilizumab noticed a weight increase? I can't seem to shake off the excess weight. Thanks

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nesantos
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5 Replies
Littlefruitbat profile image
Littlefruitbat

I've been on Tocilizumab for a couple of years and have steadily increased weight. I try to eat healthy and take gentle exercise when able but nothing seems to stop the weight going on. So far I've gained about 20 pounds.

davannh profile image
davannh in reply to Littlefruitbat

I have been on Tocilizumab monthly infusion for 5 years and have steadily gained weight. I eat very little but have gained at least 20lbs. Tocilizumab works very well for me but I hate the weight gain.

Hi Nesantos,

I gained 3 kg, I have had 3 infusions, I also can't get them off, frustating!

Wish you all the best

XxxBas

sagil profile image
sagil

I have never been able to gain weight but on Actrema I am. I also have terrible mouth sores.

creakybones profile image
creakybones

Yes I have also put on weight and have went up two dress sizes so far. Has anyone else having bowel problems. My stomach has swollen so much I look like i am full term pregnancy. I look more pregnant than when I was pregnant. My GP is treating me at the moment for an impacted bowel. I hate this extra weight as I am only 4ft 11inches so really can't afford to be this heavy. I cannot shift this weight at all and is really getting me down. Irene

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