I need to rant, so thank you in advance for anyone who is listening.
I had keyhole jaw surgery on Tuesday and I'm still feeling quite fragile and emotional. It was my second orthopaedic operation and my fourth operation in total since my RA onset. Prior to each surgery, everyone was made aware that I live in chronic pain, I am used to taking certain types of pain relief and therefore, I need careful pain management post-op. Each time, I have been promised a proper pain management regime. However, it was another complete failure and a slow, hideous recovery. I ended up discharging myself early because they kept offering paracetamol and ibruprofen, despite being told that I was in an RA flare and that even my usual meds of naproxen and co-codamol (30/500mg) weren't easing my 'normal' pain, let alone the surgical pain. I've been in 3 different hospitals, under 3 different consultants and still, I've had the same outcome. I don't expect the general public to know that it's not "just arthritis" but I do expect more of the medical community. Am I hoping for too much?
I don't know if it's just me but I've seen quite a few throwaway comments about RA 'only' being synovitis and joint problems. Perhaps I'm feeling super sensitive but it is quite hurtful to have it brushed off in this way especially as it's not even correct. I'm not trying to 'one up' anyone and I shan't list what RA can do to a body and what it has done to mine but I wish people would consider others' feelings.
I hate what RA has done to my physical health and I hate what it's doing to my emotional health. I thought it would get easier after 6 years but as it turns out, it's still really hard.