Sore and hurting as well,when will this end......... - NRAS

NRAS

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Sore and hurting as well,when will this end.........

sylvi profile image
14 Replies

I got up this morning feeling like i don't know what. My fingers are sore and keep locking. my neck hurts like hell. Today has not been a good one for me. My eyes are swollen and earlier this afternoon it felt like a knife had gone through it and just a little while ago as well. My shoulder is causing me grieve tonight too. I went and had my nails done this afternoon, i didn't really feel up to it,but i went as it would do me some good,pity it didn't. The degeneration in my neck is causing my vertigo in my head feel very strange. Yesterday i went out to the front garden to clean it up ready to put more plants in,but hubby had to do it for me as i was struggling to do it. Today all i seem to have had is the sweats on and off all day.

One week on from my infusion i am still getting up and down the stairs quite well. I am getting stronger at it as well. I hope you all have a lovely bank holiday and the sun shines for you. Hugs to everyone.xxx

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sylvi profile image
sylvi
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14 Replies
miss profile image
miss

Sorry to hear your in the wars again. Sending you a hug and hope tomorrow is a better day for you . Love your picture today. Love little old me xx

sylvi profile image
sylvi in reply to miss

Thank you darling. Xxx

Smiler53 profile image
Smiler53

Hi Sylvi, hope you are feeling a little better today. Gentle hugs x

sylvi profile image
sylvi in reply to Smiler53

Morning SMiler,i haven't slept very well last night,i woke up nearly every hour and i gave up at 5.30 am and i am down here. I think i will have to go back to bed this afternoon. xxxx

Smiler53 profile image
Smiler53 in reply to sylvi

Ditto. Kept looking at the clock, knees and hands throbbing, H snoring, so came down 4.15 this morning - peaceful down here. Like you, may have a nap this afternoon Zzzzz......

sylvi profile image
sylvi in reply to Smiler53

I get fed up with the way my health is going i don't know about you. Yesterday i started to do some gardening and had to give up and hubby finished for me. Not yesterday Thursday my memory is getting so poor.xxxx

Smiler53 profile image
Smiler53 in reply to sylvi

I know where you are coming from there. Sometimes there seems no end to the pain (the invisible pain to others!) and the condition itself and you are just sick of it! A couple of days back I didn't want to be on the planet - I think everything just drags you down at times and this is one of them. Memory what's that?! I think I had one of those once but can't recall!!! I've started talking to myself out loud these days too - think I'm going cuckoo! Hugs to you Sylvi x

sylvi profile image
sylvi in reply to Smiler53

I can understand about not being on the planet,i have said i wished i was dead at times when i have felt that bad. I keep being told how well i look,and i say but you don't see me when i am at my worst as i don't go outside the house then. I wish people could suffer like we do for one day they would alter how they view us wouldn't they.xxxx

Smiler53 profile image
Smiler53 in reply to sylvi

It seems that so many of us with disease say the same. The amount of people that say to me 'oh I've got it in my finger' Then when I ask what they take for it or who do they see at the hospital, I get the reply of 'Oh no, I don't take anything, It's only Arthritis isn't it, you just have to get on with it don't you!' Arghhhhhhhhh! X

sylvi profile image
sylvi in reply to Smiler53

If only it was that easy we wouldn't be in so much pain. I am not missed when i don't go out and when i do nobody says where have you been have you been rough. They only worry when your out and suffering.My trouble is i always look so well.xxx

Smiler53 profile image
Smiler53 in reply to sylvi

I know Sylvi. People always say that to me. You always look so well and always smiling (hence the nickname!) Let's hope we'll have a better day today. We live in hope eh!! Sending you lots of love x

sylvi profile image
sylvi in reply to Smiler53

Back you as well darling.xxx

cathie profile image
cathie in reply to sylvi

I've been in that place where u wish you couldn't wake up. Shingles pain seems to have coincided with biologic kicking in. But, Sylvie, well done for keeping going that's such a hard thing. I'm sure the garden is healing for you, just emotionally at least. Hugs

sylvi profile image
sylvi in reply to cathie

It is Cathie,i am in and out of it this morning getting as many plants as i can out of our conservatory as we are going away next weekend to Cornwall and i want that room cleared so my daughter doesn't have as much to do. I am losing the battle though as i don't feel very well this morning,but i am sure i will survive i always do.xxx

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