Well its the time of year that sees me more indoors, even though my diary is still full of work. I can handle the cold and some wind, but I cannot seem to tolerate the rain.
I got really soaked right through last week and was outside for 4 hours. My raincoat let the water through. I must have used the wrong washing powder and it took off the waterproof protective coating. That I did not catch a cold was a miracle.
My GP is probably going to be very upset with me but I have taken myself off my meds completely a good month ago. I could not handle the problems with my hands and arms anymore. Plus the morning stiffness and taking forever to get going. I was also worried that my kidneys were not working well as I hardly needed to go to the loo even though I drank more fluids.
So I was thinking about other peoples experiences on this forum and did a cold turkey, no more Ibuprofen, Amitriptyline and Pregabalin. And you know what? My symptoms have reduced drastically. Hardly any more excruciating pains in my arms. My hands are not as tingly and sensitive as before. I stopped dropping things all the time. However my Carpal Tunnel symptoms are still the same. I am having the Carpal Tunnel test mid November. I did not want any drugs to screw up the test outcome. I feel less stiff in the mornings, I can now get up at 7am and be out the door by 8.30am. Which with winter and the clocks change reduces my hours being able to work outside.
Today and tomorrow the weather is quite nice, but I just cannot be asked to go outside, even though I should be earning some dosh to tide me over the lean season. I have been working too hard and feel that my body needs a rest, even though the weather forecast for next week is atrocious and I will be stuck inside.
As I have arthritis in my neck I do feel it impacting me at times and I can also feel my shoulders being a bit more still. I feel the need to go to the loo naturally as well now. I still have the same issues when reading a book or ipad. The hands start to tingle and get painful, so have to change positions when sitting quite often or just sit differently all the time. I have also lost a lot of strength in my hands. Struggling to open bottles, jars and tins on the ring pull, so have bought a ring pull lever. But its not as bad as when on the meds. So all in all I feel quite good within reason of course.
I have started to get my art and crafts kits out to keep those fingers nimble over the winter. Also to get some crafting in before I have the Carpal tunnel operations on my hands.
The thumb on my right hand is quite sore. Its swollen up and won't bend much. It hurts quite bad if it gets knocked. I banged it against a bag of shredded bark the other day. It felt like I hit my funny bone. I nearly cried of pain. The round bone where the thumb is attached to the hand seems swollen and painful to pressure. This has not changed since off the meds.
I am taking more Vitamin B's though and Vit E and a couple of different multi vitamins and Magnesium. I was struggling to find the right tablets not coated or filled with excessive colouring and artificial sweeteners as those make me break out big time. Boots and Holland & Barrett had some. But the sizes of some of the tablets are so huge. I struggle with big tablets.
The other issue was my eyesight. It really changed negatively when on the meds. Its a lot better now but still not as good as before, so will most likely need new specs.
A new thing which is starting up is this sensitivity of the skin. I feel itchy wherever the skin gets exposed to cooler air. So when I change from day clothes into evening clothes my skin starts to itch and I have to scratch. When I had a shower and come out and dry off I itch all over. This stops after a while when I get dressed and wrapped up warm. This is really weird and just another RA symptom I guess I currently have to live with I guess.
So thats all really. Just waiting to get the nerve conduction test done now to plan the next steps of this saga.