RA

[happy12]

I just feel exhausted all the time........I am so tired of being tired and cold, I feel cold all the time, my skin tingles and burns, especially my face area, around the eyes and the cheeks, is this normal, sometimes I wonder if I will ever feel warm again.......does it get any better........ I am taking 10 mtx weekly....

[ShellyWelly]

So sorry to hear that. I don't seem to be able to regulate my temperature any more. I get hot very quickly and when I get cold, It takes me hours to get warm again, not sure if it is the RD or what though.

Sorry to hear you feel so tired. I've just started taking vitamin B12, which is helping a little bit, but I still feel totally exhausted all the time. Can you remember the last time you woke up and felt refreshed and ready to face the day? No, me either!

*hugs* xxx

[nomoreheels]

I empathise with you. Although I don't have tingling any more & my RD is considered controlled with my meds I'm continually hot internally yet cold externally. I'm by choice unmedicated menopausal but this internal heat is so different to "the norm" I know to be caused by my hormones.

What do do? I'm not sure, but I see my GP in a couple of weeks for a pain med review so will question if maybe I'm not as controlled as is thought. Maybe your MTX dose isn't quite right & needs tweaking? I'd see if you could speak to your Rheumy nurse & explain how things are at the mo. In the meantime don't fight your tiredness & try to rest up. It may help a little.

[Hidden]

Yes I can relate to this. The trouble is that the MTX might be working well for the joints but not so well for the systemic symptoms that can go with a systemic disease. This is the situation for me presently although I'm off all RA drugs and not having much joint pain or swellling at all still. I feel constantly wiped out and tingly and cold. My eyes sting with dryness and my arms and legs feel burning and cold and wet and constantly raging with pins and needles. It could relate to the MTX in your case or else to other systemic connective tissue problems such as secondary Raynauds and Sjogrens - which I'm told I have too as part of my RD.

I do hope you can ask your consultant soon or see your rheumy nurse perhaps? Hope things improve for you very soon.

[happy12]

thank you - helps just knowing that there are others out there who feel the same. Hope that you feel better too...