Meds: Meds I know it's not hard to take my meds and... - NRAS

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cliffsills profile image
10 Replies

Meds I know it's not hard to take my meds and feel so much better since they sorted out what is best for me. But when it comes round to the time I should take them I really don't want to. As I said they are working but I feel depressed before I take them and worried what there doing to me after. Is this normal.

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cliffsills profile image
cliffsills
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10 Replies

Hi cliffsills,

I wonder if it's because by taking your meds you are admitting you are ill? The fact that you know you will be depending on them for many years must have a psychological effect. Just a thought. But glad they are making you feel better. Take care.

nomoreheels profile image
nomoreheels

Hiya cliffsills. I know this can be a problem for some people. Is it possible it's a psychological thing & it's more about accepting you have a chronic disease? When you have your next dose turn it around & try &

concentrate on how much better you are now you're taking them & think back to when you didn't have them.

Do you feel this way any other time? I ask as some of the RD meds depression is listed as a side effect. Don't know but worth thinking about.

gwen2013 profile image
gwen2013

that's is how i feel on a Thursday morning, i dread Thursdays coming, i can hear my mum saying you know you must come on now take your meds you will feel better, the worse it tastes the better it is for you, why are mums always right,

I was like this at the beginning of my journey and every time I have to take a new type. The way I got round it was I thought of the worse thing that could happen to me, being loosing my small bosom! I would look at them and say if these were for you would I take them, YES would scream my mind, so I popped the drugs in my mouth, and rewarded myself with a sweet afterwards. My first GP - Dr Pinnegar always gave children a sweet after the bad medicine of an injection, have continued to do this for myself and my family ever since.

nomoreheels profile image
nomoreheels in reply to

Love this idea Georje, it reminds me of Mary Poppins & a Spoonful of Sugar & brought back memories. My mum & dad took me to see the film when it was first released & I cried all the way home because she'd left the children. They tried to comfort me by saying she was going to help other children & clearly remember saying but it won't be Jane & Michael, they love her! I even remember the ride home as it was a rainy evening which seemed to make it all the worse!!

Yep, of course it's normal. But the disease worries me a lot more. RD is bad for your health! The drugs, well, not only do they (hopefully) stop the disease wrecking your body, but as long as we have regular blood tests any problems are picked up before they do us any harm. I read a post on another forum by a 90 year old man who had no truck with us med-shy folk, he'd been taking Mtx ever since it became available I think! And was doing very nicely!

I have had the same issue as you exactly when I was taking MTX - especially by injection. As Poems says for me it was the reminder that I'm ill that I found so hard to bear. I like all the suggestions people have offered. There's no getting round the fact that this is a huge psychological leap whether the drugs work or not. But I'm currently off all meds and scared witless so this certainly isn't the answer. No suggestions for you from me but plenty of sympathy!

cliffsills profile image
cliffsills

Thanks all for taking the time to reply. I appreciate all what has been said. Deep down I know I have to take them. Six months ago I couldn't get out of a chair or sit down on one come to that. Now I'm active again. The worry will never go but I'm sure it must get easier. Many thanks.

magglen profile image
magglen

I was never one to take medication until I got RD. It was hard to give in to, at first, but my consultant told me leaving RD untreated was more harmful to my body than the drugs. Since I started on Enbrel my life has been transformed. I feel well, and am able to walk two to three miles a day and often more.... I am 79 yrs.

I now see the medication as a gift from Heaven! xx

francherry profile image
francherry

I can totally relate to this. Although I still find it nerve-wracking injecting twice a week, my anxiety has lessened the more times I do it and it has got easier. Also, as the medication has started to work (which I can tell by having to come off it for a few weeks), I actually can't wait to get back on it! (I never thought I would say that). It's taken a while to get to this point as I first tried 4 drugs that didn't work. Emotionally it is tough to deal with and I find it helps to move on to something else /go out soon after injecting and taking the pills so I don't spend too long thinking about it and can get on with my day. Great to hear that the drugs are working for you.

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