GP has written to say the surgery won't be prescribing me celebrex anymore!

All I got was a letter saying they were discontinuing the celebrex due to cardiovascular risks and a prescription for Naxproxen. I'm cross because I have discussed it with them before and it was agreed that they are prescribing under the instruction of my rheumatologist and that the risks vs. benefits have been discussed. Everyone was in agreement that I could continue but their new blanket policy has now seen them discontinuing the drug for everyone. It works really well for me, better than any other anti-inflammatories, although I have yet to try Naproxen.

I have enough celebrex for now and I see my rheum on 1st Sept, so I will discuss it with her then.

Has anyone else experienced this?

19 Replies

  • just had this discussion yesterday as i am already on Naproxen and it really helps but they want me on a new anticoagulant now which is better as you dont need blood checks on it! i also got a letter naming a gp who will look over my case, so i am pleased they are looking at it all deeply and making any changes needed. x

  • Hi

    Arcoxia is in the same family, perhaps you could ask about that. I find arcoxia more beneficial than naxproxen.

    Good luck


  • I was asked by a Registrar to only take my 90mg etoricoxib prn last January. He was following NICE guidelines re CV risk in long term use & followed his request to the letter so only had 10 in 6 months. Needless to say I've had pain & more swelling than normal not having a daily NSAID.

    Last month my Rheumy reinstated it to take every other day with the proviso my lipids, BP & heart is checked to ensure all was ok to continue on them. If everything is fine she says she will then inform my GP to amend my script to daily. She wasn't best pleased that her Registrar had instructed as he did without checking with her first.

    I have tried both celecoxib & that worked for so long but naproxen did very little for me. As celecoxib is in the same drug group & so under the same guideline if your GP won't prescribe it maybe your Rheumy will if investigations clear you for taking it? Worth asking. Don't forget if your Rheumy sanctions it for you if the Practice has signed up to shared care they're obligated to prescribe it on the say so of your Rheumy.

    Good luck.

  • I been taking it for six years with no problems so far. The hospital put me on it and apart from the GP pharmacy not being able to get it once, nobody has said that I need to change.

  • I really wanted to try Celebrex or Arcoxia, as friends have told me these work very well, but my GP would only let me have Meloxicam. Not sure if this is about my health or their finances.

  • Your theory may be correct about price anyway twitchy. Meloxicam is far cheaper!

  • Hello

    I still take Celebrex, the problem with me was that other NSID were causing bleeding and bruising and my bloods were showing changes that could cause problems.

    Celebrex and other Cox 2 inhibiters were the only ones that I was able to take. Going back to the old type of medications would be bad for my health, so I hope they will leave me alone as it took an age to sort my problems out


  • I take Naproxen and i find it very good.

  • I am now wondering if it's a cost thing. I recall 5 years ago when I was first put on this drug by my (previous) rheum that my GP told me it was very expensive and asked me to change drugs. My rheum was having none of it and told them in no uncertain terms that they were not to make decisions on his behalf.

  • My Rheumy seems to be more concerned with the possible CV issues but little doubt that GPs nowadays have to keep a close eye on their Practices budget, especially when prescribing. Naproxen is certainly cheaper than etoricoxib at £1.90 for 28 as opposed to £22.96. This is becoming a real concern to me as my h's diabetes was well controlled on 2 different tablets when we arrived back in the UK but one cost £130 per month & was refused it when we had our first appointment to get our meds. Needless to say the one med he's left with is cheap in comparison. Two nurses & the GP he's now seeing regularly in an attempt to control his diabetes each give varying reasons for it not to be prescribed leaving him with the one he remains on being upped in an attempt to bring his blood sugars down. It's causing no end of problems & has been prescribed many other different meds to try to solve issues some of which a direct result of not being controlled. So where's the saving? Surely not the best way, messing about with people's lives & countless otherwise unnecessary appointments.

  • Meloxicam works well for me. I find it's better than naproxen. I do try not to take it as it still upsets my stomach a bit. I know that docs worry about the increased cardiovascular risks of the more selective NSAIDs, when people with RD already have an increased risk. You could criticise them if they didn't!

  • But the problem is, they do monitor me and agreed that I had made an informed decision. They then have gone and made this decision without me!

    I already have yearly cholesterol bloods, fasting blood glucose, ECGs, blood pressure and general health check to monitor my cardiovascular system.

    I'm feeling quite vulnerable at the moment and nervous about trying a new medication. I was not giving the option of making an informed choice about starting Naproxen, they just sent me a prescription. How is that ok?!

  • I would think crashdoll as it's a blanket decision by your Practice you'll be on a hiding to nothing facing up to them so I'd ask your Rheumy if he thinks that naproxen is the better option for you. He prescribed celebrex so I would guess the answer will be no. If it's considered you're ok to continue on it then if they've signed the Shared Care agreement they will find they have no option to prescribe it if it's an effective med for you.

    Put your foot down with a firm hand!

    Unfortunately we can't do this for my h as his repaglinide was prescribed in Spain otherwise we'll be doing exactly this. I had a result when 2 nurses & eventually my Rheumy intervened when my GP insisted they could only prescribe MTX orally after taking it subcut over 3 years with fewer side effects. The haven't queried my etoricoxib oddly, I wonder why!!!

  • I know I probably can't do anything. I'm still quite miffed though. :( Thank you for the replies though, I appreciate it.

  • Nooooo crashdoll.... please, if it works for you don't just take your Practice's word you can't continue on it. I fought for MTX injections & won, but only after my Rheumy told them they had to when I confirmed they'd signed the shared care agreement. If I hadn't I'd be suffering unwanted & unnecessary side effects on tablets. As you said it's a blanket decision for all so if it works for you ask your Rheumy, he prescribed it in the first place so obviously thought it was the better NSAID. It's a COX-2 inhibitor & blocks a specific enzyme & not the same formula as naproxen. That didn't cover period pain for me! You need to be as pain free as possible & if it works half as good for you as etoricoxib does for me it's at least worth the ask.

    Put that smiley face on & do it girl !!!!! :)

  • I'm not allowed any NSAID as I get stomach probs and also have high BP so thank yourselves a bit lucky you get any lol. I would love some!

    Anyone going to the NRAS conference in Gomersal on Sept 19th?

  • I am just frustrated because I am young, I work full-time in a very busy and fast paced job that involves a lot of driving in addition to doing an academic qualification. I need to be able to function as best as I possibly can. Surely it's better than I'm working and contributing to society rather than being too unwell to work?

    Sigh! :(

  • Definitely go the Rheumy route then. There's little point struggling if he'll prescribe it if all's ok.

  • I would say so too. Do you have a nurse specialist you can ring? Or go back to your gp and fight!

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