No help

[Crazyjo]

Spoke to rhuemy nurse.. Waste of time just told to keep myself dosed up on painkillers till my tocilizumab infusion next week....and then wait till see them for my rescore to see if it helping... That's helpful I think not

[sylvi]

Ouch that isn't nice is it. Will a hug help.xxx

[Crazyjo in reply to sylvi]

Thanks a hug always helps x

[hatshepsut]

Sometimes I wish these people could have just one day in our shoes!!! What a totally unacceptable response.

Just hang in there. Thinking of you!

Luv M xxx

[Crazyjo in reply to hatshepsut]

Your right there, just some understanding of how hard it is x

[Hidden]

Hello

Did you feel that the infusion could have been done this week, The only thing they can do, wait till the treatment is given and then see if the medication is working., If you suffer problems with your initial treatment they have a point of reference, If you take different medications you may suffer problems that may not be picked up.

Give time to fulfil your requirements, It may be that they have not an appointment available at this time.

Sadly we all on here hit problems with clinics etc and we feel I want treatment now. sometimes treatment need to wait until a slot is available

Waiting can be such a pain

Good Luck

BOB .

[Crazyjo in reply to Hidden]

Was calling today as the steroid infusion had last week didn't help much, was just annoyed with call as she was one of the ones with a "just get on and deal with it attitude" normally I find my clinic really helpful where advice goes

Jo x

[Hidden in reply to Crazyjo]

Hello Jo

I hate that attitude,its not going to happen saying, or when they turn around and say deal with it They really are there to deal with it

All the best

BOB

[Bazzypants]

Hi crazyjo, I am going to my RA nurse in the morning got so much going on with my body don't know where to start lol, but like you I am not filled with hope that the appointment will bring any resolve, I think that the RA doctors don't see their patients enough and leave it all to the nurses.Sorry you had such a pointless appointment xxxx keep your chin up xx

[Crazyjo in reply to Bazzypants]

Good luck for tomorrow x

[allanah]

Oh Jo bet you are so fed u p , well be strong , take the blooming painkillers and I hope next weeks infusion helps you so much xxxx

[Crazyjo in reply to allanah]

Yep a bit, she wasn't the very helpful type nurse as they usual are. GP given me some more oramorph so be that for now and rest x

[miss]

Not good here's hoping your infusion will help.Think sometimes if these people had to live like us sure think things would be very different xxx

[Neonkitty59]

Hugs Jo .. lots of gentle ones. xxx

[BoneyC]

I saw a rheumatology nurse with that kind of attitude last May and complained to PALS. I'd been on Humira for 3 months, got a severe kidney infection and yet she told me I could i) continue with Humira or ii) wait 3 months to see the Rheumatologist!