just had a visit from occupational therapist too see how I am coping at home with my mobility , what a lovely lady . hopefully with some Adjustments at home I will be able to manage better with the bath toilet and getting in and out of bed . I feel about 80 not 50 got to get my head around all this feel like I don't need all this but my body is saying different I really want to cry at what I've become and fear for what's coming next . My hubby is so supportive and I feel for him too because it's affected both our lives . Any of you struggling at home please don't be afraid to ask for this help it will make life a little easier .
Occupational therapists : just had a visit from... - NRAS
Aww thanks Mary , yeah it's awful how it changes your life so much but knowing others are going through this as well makes you realise your not alone , sorry your in the same boat Hun I was so depressed before I found this site because know one I knew suffered with this or understood what it was like , we can all have a moan and let off steam on here . Hope you have some relief from your pain x
hi Felicity, glad you have some help to make life easier. I so agree with you, my husband is really supportive but neither of us thought our lives would be so effected by this illness. .i found it hard accepting loo & bath seats but i'm over that now & enjoy the independance i've reclaimed. This site has been a major support to me also. Lots of love Alison xx
Alison I'm so glad it's not only me that felt having these adaptions was something to be afraid of , like you , I've got to a point where I can't think about what they look like or what others think about it . Cause if it helps all well and good for a better way of oping with this bloody awful condition . Regards Teresa
Teresa, I have a beautiful new walk in shower. They removed the bath and put it in the space the bath took up. Half height folding doors as well as shower curtains. And a chair too. I had to wait about 2 years to get the work sanctioned by the various organisations involved, but well worth it.
Kath that's brill my daughters fatherinlaw who lives with them and is wheelchair bound had it put in has well , but I really love a bath it's helps soothe my aches and pains just need help from hubby to get out , but who knows what the future holds . Our plans are in 7-8 yrs when hubby can retire move into a nice little bungalow with no stairs . How are you with stairs I find coming down worse than going up lol .
Sorry to hear how you're feeling, I also know what you mean.
I had an occupational therapist come round when I first had RA.
The adaptions make life slightly easier.I had rails put down each side of the stairs, raised toilet seat, grab rails.
Also since then I have invested in a downstairs toilet, wish I'd have done it years ago!
I am forty years old, and I also dream of buying a bungalow. It would be heaven!
At the moment I limit using the upstairs, only for going to bed. I tend to only have a bath at bedtime otherwise it means an extra trip up.
I also bought a mobility scooter which allows me to take my dog for walks.
It certainly changes your life!
Hope it doesn't take too long for your items to arrive.
That's really nice to hear you've all benefited from having these adaptions I don't feel so bad now x
hi felicty i had occupational health come to me last year after diagnosed theymade adaptions for me and i have to say i was sceptical at first but the simplest of adaptions hs made a worldof difference doesnt help with the pain lol but just takes a bit of the strain out of things i had tiolet raised swivel bath chair and another bannister rail fitted a godsend to any one get in now for new budgets april as takes a while to come out to you good luck xxxx