Well it has been around 31 years since I last saw a rheumatologist. He was horrified I was not being looked after even if I can't take medication. After all something might be made that can help and also operations etc might be suggested sometime...will decide on that. He took x-rays and blood tests and I see him again in Feb.
Also baffled as to why no one was caring for me re coeliac etc and left quite alone. He thinks my GP might be annoyed I got an ND etc and also that I had to go to the Czech Republic to find out what was wrong with me when they found the coeliac etc. He did at least look at the joints etc though no knowledge of why my body is twisting yet, neck, spine, fingers and wrists, hips, knees, ankles and toes so far.