3.30 today, appointment with my RA consultant - NRAS

NRAS
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3.30 today, appointment with my RA consultant

lab-lover
lab-lover
19 Replies

..and I have never before been so pleased that the 3 week flare up of my hands is still with me.. just hoping that it will not clear throughout the day .. I would cross fingers, if I could. Anyway, thanks to stuff I have learnt from this site, I have questions to ask, and pictures to show... I am hoping for an Anti TNF ... but won't hold my breath

19 Replies
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Luthien

Good luck lab-lover I know exactly what you mean about wanting your flare up to stay, I pray for a flare up every time I go to my rheumy just so they can see all the inflammation etc. Don't let them fob you off, if none of the DMARDS have worked then fight for your right to get onto anti-TNF. That's what I had to do.

I shall be praying for a good result & hope you get onto anti-TNF.

Big hugs & stay strong. X

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lab-lover
lab-lover
in reply to Luthien

Thanks Luthien, I have actually had enbrel, earlier this year, they said it wasn't working as it should, so tried me on Sulfalazine..which made me ill, so I am just on MXT, (which I have always been on since diagnosed 3 yrs ago)

Pam x

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Luthien
Luthien
in reply to lab-lover

I'm trying Enbrel in the New Year, had a go at Cimzia which didn't work. Used to be on Sulfa....this eventually failed hence now on anti-TNF's.

Hope whatever they offer you next will be "the one". xx

1 like
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Kittykatxxxxx

Good luck! :) x

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lab-lover

Thank you Kitty x

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jenwight

Good Luck - I am hoping mine stays around until my appointment on Thursday it really would be helpful if they can see what its like when it flares

Jen x

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lab-lover
lab-lover
in reply to jenwight

Thanks Jen... I have had no painkillers today...far to painful, we should not have to make ourselves suffer, to 'prove' we are in such pain. Goof luck for Thurs

Pam x

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Hidden
Hidden

Hello BOB here,

You are like me, seems to clear for a time when seeing the Specialist, mine now beginning to hurt because of cold weather

Good Luck

BOB

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lab-lover
lab-lover
in reply to Hidden

thanks, Bob. Ugh to cold weather, I am cold, even indoors (but I only have oil C/H, and it costs a fortune...

Pam

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allanah

Good luck remember you can have mtx PLUS a biological, eg after Enbrel I got Humira, obviously not prescribing , just telling you what happened to me, it's in the NICE guidelines so , they are another string to your tightly fired bow today with the rest of your evidence lol. And remember u r in pain, tell him, when he says how are you, don't say good thanks, they r not mind readers, it's ok to tell them u feel rubbish, don be brave for once.

Lots of love and don't leave till you are happy, they won't throw you out, well not often lol!

Good luck and let us know what he says. axxx

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lab-lover
lab-lover
in reply to allanah

Thanks Allanah, Just changed into easy on/off clothes, ready to leave shortly.. I am very teary today, so it won't take much for the consult to set me off, lol xxx

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allanah
allanah
in reply to lab-lover

Good bawl ur eyes out lol, it worked for me ha ha hah xx

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Dotty7

Hope it goes well.

Dotty xx

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mattcass

Hi Lab-Lover, I done the same I bawled my eyes out non-stop till Fran let me out to the pub, Naw only joking good luck for today tear in the eye all the time tissue or hankie in the hand always, Matt/Fran

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mattcass
mattcass
in reply to mattcass

Sorry did not relies the time, late as usual, Matt

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hev53

Thinking of you and hoping for a good outcome. xx

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miss

Hope all went well for you let us know how you got on xx

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lab-lover

Good result everyone ..... I have done a new post...ps, I did burst into tears, when the das score was being done, lol

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