Just been to Rheumy, who's growing on me every visit! Last week I though, yeah I am so much better, managed ,all be it with help , to go to glasto, holiday etc with three one monthly steroids. But last couple of days ouch! But hardly any swelling?
Luckily my review was today, dragged myself there, and my DAS was back highish again at 6.5. Doh!
So bless him after a long discussion of him saying we maybe need to change the biological, we and I mean we, came up with, another steroid jab today to give the Humira a bit of time to work , I do feel a bit better on the Humira than other biologicals really.
He thinks it's the steroids that are helping though so has written in the plan that if I call anytime , they will change the biological....again!
So he made me an appointment for six months, laughing , and said , bet I see u in six weeks lol.
Had a sleep and now joining the manic Mads ( hope u feeling better Mads) group, and hoping I feel much better in a couple of days. Ps don't want sympathy lol, it was to show u how good joint consultations can be !! Hugs Axx
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allanah
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Why not sympathy you dish it out enough times, but, if not why not have empathy instead, which is my preference. Speaking to people who know what it's like, you don't have to say much as they already know, and nod in agreement as I did when reading your post. Hope they kick in soon. xxx
Yes thank you pain free from my RA just now, I have a rash thinking this was one of the side effect for Hdroxy but GP informed me I have shingles very painful.Matt
Oh no! I had shingles from my first steroid drip, but I hope you got the antiviral s if u r allowed, they made mine heal more quickly. Can't believe though u substituted one pain for another. Well hoping things settle down for you very soon and you get a nice period of wellness xxxxxxx
Isn't it great when you get a good rheumy and things work.It just goes to show what co-operation can achieve. Hugs Allanah and yes some hugs as well, lots of them.xxxx
Not too bad. Famous last words tho! Feel awful over last couple of days as I've got one of those 'colds' that won't come out. Which has set off my RA. So home feeling sorry for myself at the mo.
Well you know I'm on board with everyone on the good ship Sympathy whenever you want some - but do turn that rock n roll down or I may not hear you calling! X
Poor baby.....I know what it's like when you have to get bio's changed......I've been on four now.....this latest one abatacept seems to be doing the trick though. I'm not pain free as I was on others but it has given ma a lot more energy and I can stand up straight and open my hands.....so I'm not complaining.....you will find the one for you. And don't be worrying about running out of them......my rheumy assured me that there are plenty of new drugs coming online all the time. So keep the faith girl and just plod on till you find the right one......XXXXX
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What does das score mean
Urgent help required! Is your DAS score <5.1 and your RA not well controlled?
Das score and follow up consultant appointment.
Why don't feet count re the DAS score?
DAS At last a web site to answer my question
