surgery developed cauda equina syndrome and spinal ne... - NRAS

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surgery developed cauda equina syndrome and spinal nerve damage

ab4u profile image
ab4u
4 Replies

Have been to many specialists before my emergency surgery, this was after more than a year being in chronic pain bounced around from one waiting list to another mis-diagnoised. My question - Is there any hope for treatment through the HSE for nerve damage, if not then who can help ?

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ab4u
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allanah profile image
allanah

Hi I am really sorry I don't know the answer to you question. I can imagine you r worried about your health problems. Best bet is maybe to go see a reputable neuro surgeon and ask these difficult questions to him.

Good luck xxxxxxxx

earthwitch profile image
earthwitch

Insist on a referral to a spinal injury rehabilitation centre. People with CES tend to be forgotten about a bit, but it is a spinal cord injury after all, and you could get a lot of really good help from spinal rehab units, including physio, pain control, and other rehab. They do have long waiting lists usually though, and you might really have to insist that you do have a spinal cord injury and do need rehab.

Is this as well as having RA if you have come here? My friend had emergency spinal surgery for Cauda Equina and she has just been to see her neuro consultant and is to have ongoing treatment - injections near her spine I think she said. She has regular physio and exercises daily but has already sustained irepairable nerve damage in her buttocks and legs so has lost some feeling. I can't advise you but if you have had this emergency surgery I'm amazed if you don't have a consultant you can speak to or ongoing help and therapy? Hope you can access these soon. X

ab4u profile image
ab4u

Thanks for all your reply's and advice, will follow them up, am trying to find out what and where in Ireland can I get the best treatment because after the medical mistakes made I am going after the ones that put me in this state. It started off with severe lower back pain - Doctor prescribed pain killers, dosage increased as pain go worse over time. After a while got my GP to ref me to see a back and pain specialist was advised "No surgery, wait and see". Pain became chronic 24/7 spinal injections started from GP helped but 7 months passed. Was in a really bad way insisted on a scan, put on waiting list, could not wait and paid for it. 5 months later 4 day b4 my emergency surgery had appointment with Gyne, I could barley walk, he just referred me to another back and pain specialist and waiting list. 14 months since starting pain killers. I checked myself into Dublin A&E as numbness was spreading. Was sent home. Checked myself in again next day, when loosing control. Had emergency surgery 2 hours later. One thing I read referring to CES is TIME and the earlier its diagnosed the better chance of recovery. 15 months passed between waiting lists/specialists. unless I pushed where would I be today? Thanks again

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