My first blog post and first off I have to say how helpful and useful looking at everyone,s input has been. I was eventually diagnosed with RA last July after a year of , looking back, quite obvious symptoms but because I was sero negative the only person who spotted it was a physio dealing with my carpal tunnel in both hands( which the rheumy said was actually the first RA signs in retrospect). I have to say I could not believe how painful my joints were and looking back really don't know how I managed. Anyway the good news was steroids which the rheumy put me on straight away and also surfasalazine. I thought I was in heaven, no pain and absolutely bubbling almost overnight. Unfortunately I got the dreaded headaches and major rash after six weeks so back on steroids and Mxt. But after another six weeks an infection so off the Mxt and on antibiotics. Then back on Mxt but..... I really did not think it was working and by late January I was becoming dizzy and ridiculously breathless. Off to the gp and the rheumy , more antibiotics, x rays off the Mxt and back on steroids. By Mid March all fine so back on Mxt but after six weeks dizzy and breathless again. More anti bios which really have no effect but improving as off the Mxt. But... The rheumy is convinced it is another virus, the gp thinks it is a reaction to Mxt. So have had no meds at all for three weeks and can feel RA creeping back but the medics seem to be in dispute with each other now . How do I knock heads together to get some sense? Advice welcome!
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