It is all go now! After months of lazily enjoying my steroid holiday I'm now back to reality. My Infliximab treatment will start as soon as they can fit me in, to start with I need to have two, two weeks apart, then another four weeks after then every eight weeks. Biggest negative side to it is I need to go back on MTX, I said OK but the lowest possible dose please! I don't get sick on it but I did get severe anxiety and depression. I'm just hoping it won't come back! A lot of the anxiety centred around work and I'm not working now so hoping I'll be OK.
I had a good moan about the trouble I have with my stomach, he still thought it was maybe just acid reflux and prescribed me something (which I couldn't get as I only had enough money for one drug and needed the Prednisolone). I pushed about the bad palpitations I have after eating so he sent me for an EEG - it came back 'borderline' with a small concern with electrical output? Not sure what it meant (I took the sheet out of the envelope and read it before I handed it in at the rheumy clinic). I also had a chest X-ray and need to go in for a bone density scan and a lung function test. And of course the ever present blood test as well.
I also have a prescription for MTX, folic acid and antacids. I told him I'll get them next week when I see the Opthamologist but I just don't have the money for three lots of drugs
I was also squeezed in to see the Rheumy nurse for a pre- Infliximab check and got an info pack.
It's all or nothing at that place!
And I've put on half a stone since Christmas on the steroids, going to have to give up ice cream!
Cheers for reading, ice cream to all who got this far XXX