Drat 2013: Morning all, well today's my Birthday and RA... - NRAS

NRAS

36,540 members45,166 posts

Drat 2013

zaggill profile image
22 Replies

Morning all, well today's my Birthday and RA just won't let up on me!! So far this year I've had 2 emergency ops......one in Feb that saw me loose my appendix and a Fallopian tube and one 2 weeks ago that removed an ovary that was bleeding. I'm currently on Rituximab , methotrexate , tramadol and yet again the dreaded oromorph .........soon I will be having my 3 rd round of Rituximab infusions as both the others have failed in spectacular style.......does anyone else have Rituximab failure ( this is my last try.....but hey, the Cimza put me in hospital twice so it's progress of sorts)......if so what's next?? I'm that busy working my way through meds that don't seem to work and letting Manchester university profile my failures that I'm beginning to wonder if there are any meds out there that work lol. Hope ur all having a pain free day :)

Written by
zaggill profile image
zaggill
To view profiles and participate in discussions please or .
Read more about...
22 Replies
tessintrouble profile image
tessintrouble

firstly - happy birthday! Secondly, I am sorry to hear that you are feeling so unwell. I was up ages ago because of the pain in my hip and it is pouring with rain and looking very grey outside (just the way I feel). I do hope that as the day progresses you feel better. It may be good that the university are monitoring your "failures" at least you are "in the spotlight" and not forgotton. I changed from oral mtx to injections 7 weeks ago and feel no better and as my DAS has gone from 5.89 to 6.26 in the last 4 or 5 months I am hoping for something new being suggested next week. Again, happy birthday x x

Sorry for both of you - I have not suffered from RA in this way so I can't say more than extending my sympathy. I do relate to other problems with ovaries and gut but, although this is terribly bad luck for you, surely you can't blame RA or the drugs for these? However the ops may well have triggered or worsened your RA - which does sound very drug resistant. Good thing that Manchester uni is monitoring you at least. Tilda xx

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Just a simple message from me to you,...Happy Birthday x

lbtabby profile image
lbtabby

Oh my God,so sorry ...I thought the leave comment box was not working, I was wrong !

fastball profile image
fastball in reply to lbtabby

i did that the other day and deleted them

Chris

tessintrouble profile image
tessintrouble

Ibtabby - are you trying to wish zaggil a happy birthday by any chance? LOL!!

nellysgran profile image
nellysgran

Happy Birthday, gentle hugs xx

sylvi profile image
sylvi

Happy birthday and i hope you have a good one despite the pain your in and the op thats you have had. I am sending you a sylvi hug.xxx

miss profile image
miss

Happy birthday xx

Caza profile image
Caza

I know what your birthday wishes would be, & I wish them for you to. Take care x

Lisashoemad profile image
Lisashoemad

Happy Birthday..hope you feel more comfortable soon x x x

fastball profile image
fastball

happy birthday and gentle hugs XXX

Chris

dtech profile image
dtech

Re ibtabby. Have you got a new ipad too? I left a blog answer 3 times last night. lol. Help, where are the grandchildren when I need them for IT lessons?

lbtabby profile image
lbtabby

I am mortified,!!! Didn't think about deleting !! Darn brain fog lol, x

Dogrose profile image
Dogrose

Happy birthday, hope you are able to enjoy it :-) XXX

Neonkitty profile image
Neonkitty

Hope you are able to enjoy some of your birthday. You sound to have had a right old time and deserve some much much better times. Other complications as well as RA we don't need. Let's hope for better days soon for you. xx

You may also like...

January 3rd 2013 RA Nurse appointment

ask and wondered if you all might have suggestions I might not have thought about? Happy New...

well another drug fail.

Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or...

NRAS Group Meetings w/c 14th October 2013

professionals are all very welcome to attend and you don’t have to be a member of NRAS to attend a...

Rituximab and statins - a good combo?

Peeps 🙂 I am having my first Rituximab infusion 24th May. I have high cholesterol and have booked...

New positive feedback Rituximab

positive feedback on Rituximab. I Have been on Embrel for 6/7 years which worked wonders but has...