W: My letter for the day is worn out. Worn out with the... - NRAS

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sylvi profile image
19 Replies

My letter for the day is worn out. Worn out with the struggle of pain.xxxx

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sylvi profile image
sylvi
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19 Replies
dimple75 profile image
dimple75

Hugs your way sylvi,Im sorry to hear that. Are you seing anyone soon??increasing your pain relief?..take it easy with your gardening and hope you get some relief soon.:).Liza

hi SYLVI, have just messaged you, think we need G for ground down, H for hope they sort us soon, I got to the point friday night were I DIDNT think I COULD carry on, so in pain and fed u, im ringing the consultants secretary this afternoon, I IS FOR Indecision on her part, and S is were is the Scan she is meant to be organising AND "M" is for mutinous today , I as per my personal message want to leave that sinking ship!!

minka profile image
minka in reply to

any plan of attack for leaving the sinking ship summer

i want to get of tooooo please let me know the route when ya find it

miss profile image
miss

It really is rotten for you. W wish I could do something for you ......xx

W is for worrying about you and wishing like mad that things improve for you very soon Sylvi. Tilda x

Caza profile image
Caza

Wish you a better day sylvi. We had friends stay for the weekend,we had a lovely time but boy did I suffer last night. Swollen joints & so much pain, not in the same league as you guys but pretty bad for me. So summer & John can I come with you!! x

sylvi profile image
sylvi in reply to Caza

Everytime i do anything i suffer,it doesn't matter whether i do a bit of gardening or a day out i suffer.I am usually very upbeat about this wretched illness(another w) My head is ok,just wish the rest was as good. The trouble i have is whether its ra or fibro,i don't know which is causing the problems.xxx

Sorry to hear so many of you are struggling right now. I'm WISHING you all the best and sending WARM hugs x x

Today I'm going out on my first solo WALK since my op. It's a lovely day and I need to keep fit to look after my WEIGHT

Paula x

sylvi profile image
sylvi in reply to

Do be very careful Paula as you have not been long out of hospital. Only take a small walk, know things have changed in the 18yrs since i had my op but it is still going to take time. love sylvia.xxx

in reply to sylvi

Thanks Sylvi, Mum came to visit and we went together. She's 74 and the slowest thing on two legs so definitely took it easy :-) x x

lbtabby profile image
lbtabby

A gentle hug is Winging it's way to you x

Fidget02 profile image
Fidget02

Sylvi

Hang in there!!!

Don't you dare let this dreadful RA or Fibro get to you. I rely on you to be my inspiration!

I am currently sitting on sofa looking out to sea as high as a kite!! Was in so much pain through the night had to take some oramorph earlier. (Don't usually touch it unless very bad) Don't like not being in control.

I have consultant tomorrow to see what he is going to put me on next after my severe reaction to MTX.

Hopefully they will have come up with a magic cure overnight ;)

Can't do any work today as I dread to think what I may write by mistake whilst feeling the effects of the oramorph.

Here is something to cheer you up.... I have been shortlisted for a big award, for public services. Have to go before the judges on Friday in London. Just praying that I am well enough to go.

Find out in June at an award dinner if I won or not. I am not expecting to win as the other 5 ladies are all titled etc!!!

Oh well I am just so pleased to have been nominated in first place and to have got to final shortlist!!

Keep fighting and more to the point take the day an hour by hour.

Sending gentle huge hugs your way

xxx

sylvi profile image
sylvi in reply to Fidget02

Oh my darling i am so proud of you for achieving what you have. That means a new dress and shoes,and a handbag to take with you and if your staying overnight a trip to the hairdressers is in order as well. You underestimate yourself, have every confidence that you are going to win. What exactly have you done to be nominated for the award? Also all five of you are winners for getting nominated in the first lace.xxx

Caza profile image
Caza in reply to Fidget02

Well done & good luck on Friday. Let us know how you get on x

Fidget02 profile image
Fidget02 in reply to Caza

Thanks Caza.

Certainly something different to do!!

xx

in reply to Fidget02

well done x

DWhite profile image
DWhite

I empathize! I feel the same as you and I'm so fed up.

Neverwell profile image
Neverwell

Ah bless you hope it all changes for you soon x

bencar profile image
bencar

Aw Sylvi and all the others who are suffering at the moment, I feel for you, hope you all feel better soon, sending hugs your way.

Being nominated for an award is an achievement in itself. Good luck, I do hope you win.

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