NRAS is introducing a <a href="http://www.nras.org.uk... - NRAS
NRAS is introducing a <a href="http://www.nras.org.uk/includes/documents/cm_docs/2011/r/rasmp_patient_leaflet.pdf">6 week self-management programme</a> to teach people living with RA important skills to improve their daily lives. Which anticipated benefit interests you most?
Katy-NRAS221 VotersPlease select one:
sounds good, when and were are the programmes running?
Alison
Its interesting that learning to cope with pain/fatigue is one of the most important issues. Fatigue has been one of my major problems and especially over the past month has floored me completely. When is this survey starting
This is brilliant. Having just gone through a self management course run by my OT department down in North Devon, I can honestly say it is the best thing I have done. I know there is no cure for RA, but I believe being positive and your attitude and approach to it can be the pathway to a much more rewarding life with RA.
I still have it, I still ache, my joints are still swollen some days, but my attitude to it all is so different than a few months ago. Depression and self-pity followed me around like a bad smell.
Conquering the fatigue was the best thing I did. I still know it lurks if I have over done it, but I believe I am in front of it (fingers crossed) It is so easy to overdo things. So a self management course is an excellent idea.
There I go again. waffling on....
Julie xx
I am keen to take part in this, any idea how to go about this. I am in York.
I would love to do a self management course. How do you get onto one if you don't have an OT?
I am doing the course at the moment in my area, unfortunatly Ive reluctantly missed one week due to my flare leaving me stuck in bed, but Im fighting my way to the rest off them even though Ive not really felt up to them.
Its been great to meet new people and been nice to learn, Ive found the only thing they are lacking is the time for all in the group to have a chat we get about 10 minutes when we have a coffee break but most off us end up using this time to pester the nurses etc for things we need or questions we want answering. I do feel we could pass on help like we do on here if we had half an hour after the doctors, nurses etc have finished chatting for us to have a chat maybe then we would keep up with the people we have met so it would give us a further support group.
Hi RA-Fibro
Our course has not yet been commissioned, we only launched it in July. I am working on where it is going to be commissioned currently as unfortunately in the current economic climate with hospitals facing cuts in budgets, self management programmes and patient education are often the first things to go. False economy! So, I don't know what programme you attended but it wasn't the RA Self Management Programme developed by NRAS and EPP.
BW
Ailsa
Hi Ailsa,
Has it started yet? I am really keen to attend. I am in York.
Many thanks
Tasha
Would really like to do the course as knowledge is helpfull.
I always think 'knowledge is power' and the more power I have over the tyranny that is RA the better!! I would be very keen to do such a course if
it existed in my area. I'm so thankful for places like this where you can share
experiences and encouragement. One of the many positives to be found in it all:-)))
Hopefully this will be online or regionally based.
I would be really keen to attend this course, will watch with interest.
Just reading other comments and like the sound of ginger capsules and
sickness bands - why haven't I thought of this?
I think I am going to stop sulphazalene (or however you spell it) as feeling so washed out and a constant headache, Any ideas anyone, thanks,
i ... what are ginger capsules and sickness bands ? i take salazopyrin and MTX ...hate taking drugs i even thought of coming off them and trying self help
i was on sulphazine for a while i felt awful on it then came out in rashes , i phoned my ra nurse who recommended i stop taking it straight away within a week of stop taking it i felt more my self still in pain but feeling less washed out. The ra nurse got me in to see the consultant within days of stopping sulphazine.
Maybe I should try stopping too as constantly feeling tired. I have learnt to live with pain but the tireless saps everything out of you. Will talk to my rheumy about this. Thanks.
essexgirl, please think twice before stopping treatment, I'm no doctor or nurse, but if you stop you will become ill, and will find it hard to cope. I would be very interested in a self help course, and an online one would be ideal then we could all join. The only problem with this would be no meeting each other, which would be soooo helpful, just to know how other people cope, and to be able to swap our horror stories etc!!
