Posts - Non Hodgkin's Lymphoma Friends | HealthUnlocked

Non Hodgkin's Lymphoma Friends

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Palacelover

Hello HealthUnlocked family:Is anyone out there aware of the medication named Brukinsa, which contains the ingredient zanubrutinib; apparently it is a...

Hello HealthUnlocked family:Is anyone out there aware of the medication named Br...

Palacelover

•26 days ago

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Palacelover

Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a watch and wait regime. Have been experiencing many colds and chest infections...

Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a wa...

Palacelover

•1 month ago

5 Replies

Zynlonta

Wanting to know if anyone has experience with this. I haven't seen anyone talk about it. My hubby did RCHOP, Monjuvi both failed now its this medicine.

Wanting to know if anyone has experience with this. I haven't seen anyone talk a...

Chriskw68

•2 months ago

2 Replies

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Replacing Acyclovir.

I’m trying to keep my one kidney from all medications that cause harm. Does anyone know of an antiviral that I should use instead of acyclovir? Thank you.

I’m trying to keep my one kidney from all medications that cause harm. Does anyo...

Fredismydog

•2 months ago

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After 6 rounds of RCHOP - this happened

Finished my final round of RCHOP 3 weeks ago, midway point PET scan showed incredible progress. However yesterdays PET scan shows lesions on spleen actually...

Finished my final round of RCHOP 3 weeks ago, midway point PET scan showed incre...

Oceansiderj

•3 months ago

3 Replies

Hi I feel down

I feel really low. I am awaiting my PET scan results to see if my NLPHL has decided to come back again. That's next Monday. I had a skin biopsy just before...

I feel really low. I am awaiting my PET scan results to see if my NLPHL has deci...

evie93

•4 months ago

7 Replies

Lupus SLE/ Low grade Hodgkin lymphoma

Hi all, I was diagnosed with SLE 30 + years ago, but more recently, I have been told that I have alow grade lymphoma , which has completely shook my world. I...

Hi all, I was diagnosed with SLE 30 + years ago, but more recently, I have been ...

addai

•7 months ago

7 Replies

NHL and SLL

The only side effects I have had with Calquence is I am often tired even tho I am getting enough sleep. I also have had some diarrhea off and on.

The only side effects I have had with Calquence is I am often tired even tho I a...

Knitter79

•9 months ago

1 Reply

Antibiotics while on cancer meds

I was diagnosed with SLL or Non Hodgkins Lymphoma about a month ago. I am taking Calquence 2x a day but my oncologist wants me to take an antibiotic daily...

I was diagnosed with SLL or Non Hodgkins Lymphoma about a month ago. I am taking...

Knitter79

•9 months ago

1 Reply

bowel leakage

I was taking Imbruvica for 3years, then switched to and currently taking Calquence for the past 3 years. In recent weeks have experienced bowel leakage on...

I was taking Imbruvica for 3years, then switched to and currently taking Calquen...

Agatesup

•10 months ago

3 Replies

I’m game to try couch to 5K

I’ve been through chemotherapy in 2020 Relapsed early 2021 and went through second series of chemo - finished March 2021. I’ve had no energy since. Maybe due...

I’ve been through chemotherapy in 2020 Relapsed early 2021 and went through seco...

Upforarun

•1 year ago

5 Replies

Query re Blood Tests

A friend recently died less than three weeks after diagnosis of lymph cancer (apologies if on wrong site). The thing that puzzles me is that he had surgery for...

A friend recently died less than three weeks after diagnosis of lymph cancer (ap...

MichaelJH

•1 year ago

2 Replies

Looking for Other alt options for FNHL

Was diagnosed in 2009 with Stg 4 FNHL (age 42) with 3 B symptoms. Did R-Chop and was clear after 3 treatments but did a total of 6.. no radiation needed, but...

Was diagnosed in 2009 with Stg 4 FNHL (age 42) with 3 B symptoms. Did R-Chop a...

Shelly661229

•1 year ago

1 Reply

Half (3 areas) of my cancer cells are gone!!!!

Hello! I want to share some good news. I am on Watch and Wait. I only do non traditional practices like eating cactus, ginger, tumeric, green drinks (celery,...

Hello! I want to share some good news. I am on Watch and Wait. I only do non tra...

BLP1211

•2 years ago

2 Replies

CAR T-cell therapy

Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got...

Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica(...

htam

•2 years ago

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Symptoms and trying to pin them down.

I've moved this from another forum. My brother died of non Hodgkin NHL at 54 back in 1996. I am 76. I have had occasional light bouts of fatigue over the...

I've moved this from another forum. My brother died of non Hodgkin NHL at 54 ba...

omits

•2 years ago

1 Reply

CAR T-cell therapy

I am a 20 yr. survivor after multiple treatments for nhl follicular B cell & after 3 yrs. of lil bit of remission I have lots of new disease and 2 suggested...

I am a 20 yr. survivor after multiple treatments for nhl follicular B cell & ...

ahavatee

•2 years ago

2 Replies

Gazyva treatment for follicular lymphoma

Hi! i am presently completing 6 cycles of chemo + gazyva to treat my follicular lymphoma, and then will be on two year maintenance therapy once every two...

Hi! i am presently completing 6 cycles of chemo + gazyva to treat my follicular ...

levigsc

•2 years ago

6 Replies

What to do now? Please help!

Hi, I have posted here previously and appreciate all of the replies and good wishes. My wife (active, with-it 81) has Large B Cell NHL that started as...

Hi, I have posted here previously and appreciate all of the replies and good wis...

ronsolo306

•2 years ago

2 Replies

Large B-Cell Lymphoma

My 81 year old wife has been diagnosed with Large B-Cell Lymphoma. Her first diagnosis was follicular NHL (2021) and her first treatment was 6 rounds of...

My 81 year old wife has been diagnosed with Large B-Cell Lymphoma. Her first dia...

ronsolo306

•2 years ago

2 Replies

Calquence Side effects

I have MCL, started w Calquence Jan 24 every 12 hrs, everything ok till March 28 when started w diarrhea once, twice or three times a day. Taking Loperamide...

I have MCL, started w Calquence Jan 24 every 12 hrs, everything ok till March 28...

xxje

•2 years ago

1 Reply

Upcoming NHL Webinars

Join the Patient Empowerment Network for an upcoming NHL webinar: Waldenström Macroglobulinemia Treatment Decisions: What’s Right for You?March 22 @ 1:00 pm -...

Join the Patient Empowerment Network for an upcoming NHL webinar: Waldenström Ma...

krayburn

Partner•2 years ago

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Dose it sound like lymthoma ?

Hi can eneyone help. I'm going out of my mind. I've had swollen lymph nodes in my neck for many years always told they was ok. My blood work as been of for a...

Hi can eneyone help. I'm going out of my mind. I've had swollen lymph nodes in m...

katyjoa

•2 years ago

8 Replies

New Mermber w MCL strating rescue treatment w Calquence

Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w...

Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6...

xxje

•2 years ago

1 Reply

Pre-print, not yet peer reviewed "Neoantigen Landscape Supports Feasibility of Personalized Cancer Vaccine for Follicular Lymphoma"

https://www.medrxiv.org/content/10.1101/2022.01.06.22268805v1

Piscesdreamer

•2 years ago

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A continuation of my previous post. "R-Chop failed with lymphoma, what's next treatment?" Starting Monjuvi + Revlimid this week.

My wife is scheduled to begin Monjuvi plus Revlimid this upcoming Thursday after failing to receive a good response to 6 cycles of R-CHOP (her first...

My wife is scheduled to begin Monjuvi plus Revlimid this upcoming Thursday after...

ronsolo306

•2 years ago

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R-Chop failed with lymphoma, what's next treatment?

My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan...

My wife (81 but in great physical shape) was diagnosed with stage 3 follicular l...

ronsolo306

•2 years ago

6 Replies

Venetoclax Stomach Issues

Hi everyone! I was diagnosed with Extra Nodal Marginal Zone Lymphoma at the end of September’21. I am taking part of a clinical trial that includes Rituxan and...

Hi everyone! I was diagnosed with Extra Nodal Marginal Zone Lymphoma at the end ...

difor29

•2 years ago

3 Replies

Rituxan maintenance

Finished up six months of Rituxan-Bendamustine for follicular NHL, PET scan at halfway point was clear, have another PET in a week for final results. Anyone...

Finished up six months of Rituxan-Bendamustine for follicular NHL, PET scan at h...

newerguy

•2 years ago

16 Replies

NLPHL

Hi I only joined NHL because I have NLPHLand it is rare and not many pople have heard of it. Is there any one out there with NLPHL who suffer from long term...

Hi I only joined NHL because I have NLPHLand it is rare and not many pople have ...

evie93

•2 years ago

2 Replies

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Posts - Non Hodgkin's Lymphoma Friends | HealthUnlocked

Non Hodgkin's Lymphoma Friends

Palacelover

Palacelover

Zynlonta

Replacing Acyclovir.

After 6 rounds of RCHOP - this happened

Hi I feel down

Lupus SLE/ Low grade Hodgkin lymphoma

NHL and SLL

Antibiotics while on cancer meds

bowel leakage

I’m game to try couch to 5K

Query re Blood Tests

Looking for Other alt options for FNHL

Half (3 areas) of my cancer cells are gone!!!!

CAR T-cell therapy

Symptoms and trying to pin them down.

CAR T-cell therapy

Gazyva treatment for follicular lymphoma

What to do now? Please help!

Large B-Cell Lymphoma

Calquence Side effects

Upcoming NHL Webinars

Dose it sound like lymthoma ?

New Mermber w MCL strating rescue treatment w Calquence

Pre-print, not yet peer reviewed "Neoantigen Landscape Supports Feasibility of Personalized Cancer Vaccine for Follicular Lymphoma"

A continuation of my previous post. "R-Chop failed with lymphoma, what's next treatment?" Starting Monjuvi + Revlimid this week.

R-Chop failed with lymphoma, what's next treatment?

Venetoclax Stomach Issues

Rituxan maintenance

NLPHL

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