Cutaneous T-Cell. Failure of system.

Today, oncologist in Las Cruces , Memorial Cancer Center said the chemo therapy I received at Gerald Champion Cancer in Alamogordo was not necessary.

The Memorial Cancer Center oncologist said chemo therapy was not necessary. There was no cancer in the organs or bone marrow. Yes, the cancer is appearing as a skin rash. I will have this life long. I will monitor for any future outbreak other than the skin. Occasionally I will have bloodwork to check for cancer cell activity. The rash is controlled with medicated skin cream.

[lankisterguy]

Hi RoyProp, -

If you want more info and support there is an active CTCL group that meets on line once per month. clfoundation.org/upcoming-e...

-

And there is a dermo pathologist expert doing research at Weill Cornell NY Presbyterian

weillcornell.org/cmagro

-

Although I do not have an official diagnosis of mycosis fungoides (MF) or Sézary syndrome (SS), two types of cutaneous T-cell lymphoma (CTCL), I do have similar psoriasis like symptoms linked to my CLL diagnosis.

-

And one treatment that is popular with the CLFoundation group is Photo Therapy or light box treatments with narrow band UV rays.

That has worked wonders in controlling my skin lesions.

-

Len

[Hidden in reply to lankisterguy]

My oncologist did mention radiation.

[lankisterguy in reply to Hidden]

Radiation (x-rays) are very different than narrow band UVB light rays. -

UVB only penetrates the skin a small fraction of an inch, and a few studies did not detect increases in skin cancer as a result.

-

x-rays are used to penetrate deeply and sufficient exposure can increase the risk of many different cancers.

-

Len